Author Archives: John

Hitting It Hard

Posted on by John

Yeah yeah, I know what you’re gonna say.

You said you were gonna do this last time!”

And you’d be right, except this time I’m taking concrete steps to begin designing my path out of sheltered employment and into that as a writer/social media person/advocate/doer of good. I’m going to make one of the strongest declarative statements I ever have, and say that it’s now my time! If you know me, you know how hard it is to not write words like “hope,” “think,” “try,” and other such modifiers. But right now, I just don’t have a choice.

So what does that mean in practical terms? Well for one, it should mean I will no longer be blowing the dust off of these computer keys, as I literally am now. Goodness, I’m surprised this system is still working.

And, as I’ve said before, it probably means that not every work will be worthy of publication in the New Yorker or magazines of its ilk. Well ok let’s be honest, most won’t be on that level. But I will never even approximate such ability without rigorous practice and the willingness to come up a bit short sometimes.

This week has been speckled with inspiration that I have gleaned largely from previous connections I made during my time at UNC’s grad school. These meetings have both occurred after the long work hours had concluded, which made them hard to go through with, but I feel I need to get that momentum going and keep with it, even if I suffer temporary sleep deprivation as a result.

Yesterday, I spoke with Dr. Daniel Wallace in a large academic building on the UNC campus. This chat had been facilitated by another professor who works mostly in the hospital, but who has decided that she wants to help me succeed in any way she can. I can sense how serious she is about that, and that drive is rubbing off on me.

Anyway, Wallace, a well-known writer, told me that the most important thing I can do for myself is to sit down and do what I am now; cordon off at least 15 minutes to whack out some words. I can’t promise that I will write every every day, because well, life is crazy. But I am gonna get a heck of a lot closer. I guess I have to just try to draw topics from my day and its inherent chaos.

He and the med professor suggested that one of the things I might most likely be able to do is to work with a hospital to educate others about my particular experience with disability and rare disease. So I took their ideas to today’s meeting with the good folks at the Community Empowerment Fund (CEF). I’ve talked about this organization before, as they were instrumental in helping me both to move out of my place in Carrboro and into my current apartment here in Durham. I have a lot of respect for the people who work primarily for homeless individuals in this org, but really for the good of the community at large, as they are mostly no doubt busy college students. Maybe if I’d shown that level of ingenuity while in undergrad, my lot now would have been better. I know though that I can’t change the past, can only work to improve likely future outcomes.

The young Duke student with whom I worked today helped me to find the links I needed to both Duke and UNC Hospitals, and I am thus tasked to dig through that info and locate the individuals who might be best able to provide me with ways to move forward from here. We shall see.

Today’s Tidbit

An idea I just came up with is I can end most entries with some new discovery/occurrence of each day that I do in fact write about. Probably not too surprisingly, given that I’m as much a sheep as everyone else, I’ve been playing around with the new Apple Music. I was enjoying tracks in the “New” section, and on the “Radio” stations, especially Beats One. But I finally worked out that the real fun is in searching for artists. I’m currently listening to Alicia Keys’ whole album “Elements of Freedom”. If you’ve known me for a long time, you know she used to be my wife! But alas, she’s chosen some other guy and laid down her own family. It’s all good though!

Looks like they don’t have her very first album, the one I really wanna hear, but they have most of the other stuff. This already beats Pandora, and if I could go ahead and pay I would. Yes, I know that musicians do still need to get some dough for what they do. Maybe they could take their cue from insurance, and charge a higher “premium” to those who listen to more albums. Ha.

I’m not sure what tomorrow will serve up for me to gorge on, but I guess that’ll be the fun of this process. Till then.

On a Year of Uber, and Aid Repairs

Posted on by John

Ok, pardon me while I continue to experiment with writing entries on the iPhone. My last attempt didn’t go as well as I would have liked, because I couldn’t and still can’t get the HTML to look right. We’ll see if this goes better.

Anyway, today’s post is to be about my experiences with the car sharing service Uber, with which I have navigated Durham for almost a year now. Actually, according to the stats they emailed me when celebrating having been in the Triangle for an entire year, I’ve used these folks 62 times. Sixty-four now, as a href=”http://www.blindtravel.net/follow-up-my-first-uber-experience/” target=”_blank”>first trip with them, I went today to have my hearing aids repaired. (My trip to Charlotte was brought to a screeching halt by the right side’s clogging yesterday, not fun&) I was therefore forced to take a day off of work and schedule a last-minute appointment. Maybe someday I’ll master the skill of acting more preventatively, but in my defense this time I didn’t notice that I was losing hearing till too late.

Given the similar reasons for going, I thought it would be fun to compare and contrast those experiences. So, here we go.

It took me a while to force myself from the cover’s comfort and start the day. Once I did though, I took a relatively short shower because it was so hot out. It didn’t take long for that steam to become dangerous. It was 11:15 at this point, and after an hour of goofing around on Facebook I decided I needed to get going.

There are a few things I’ve noticed as Uber has matured in this area. The first is that they’re a lot more likely to go into surge pricing during mid day than they had been before. This means that fares can increase by up to three times, in order to get drivers on the road. I have to say though that their regular fare is now so low that I’ll likely still book at even twice the rate.

On initial launch of the app, after being told there were no cars available, it went into surge mode. Then, some began to arrive once the higher prices were activated. Fortunately for me, by the time I’d tried using Lyft, a competitor app that does the same thing, (also unsuccessful), I found that the surge had ended. A ride was available in five minutes.

A kind female driver, undergrad at one of the local universities, came to get me. That’s the other thing I’ve noticed about Uber: far more women seem to drive for them than for traditional taxis. She said it was only her second week, and she only does it when time can be taken from summer class. She did a good job getting me to my destination, huge potholes and long traffic lights notwithstanding, such that I had 45 minutes to kill before my 2:00. I spent this time working on my 25th book of the year, halfway through my 50 book 50 author challenge of 2015!

The usual audiologist who sees me calls me back. The first thing she wants is to have a look in my ears. Uh-oh!

“Now you know what I always say to you about this whenever I see you,” she says.

Ah, of course; I need to get that impacted wax cleaned! Only, any mention of this traumatizes me due to an attempt at UNC Hospital that didn’t go well.

After servicing the aids for me, she called said hospital to inquire about possibly having me sedated before giving it another go. Turns out that they will only sedate if it’s part of another procedure.

So, she offers to try cleaning the ears herself, breaking into different sessions if necessary. Once she gets started though, I find the process to be relatively painless, which allows her to complete work on both ears in meer minutes.

“Wow,” she says, “I can see your eardrums for the first time since I’ve known you.”

On wrapping up all the administrative niceties, including the pretty penny I had to pass on, (worth it for reliable, sensitive, last minute service), I am ready to call my return Uber ride. Thinking from the perspective of one who is totally blind and profoundly deaf, I wanted to see if I could summon a vehicle using only my Braille display. Certain onscreen components that defy my technological terminology to explain them made this task nearly impossible for me. My hope is if such individuals are using Uber, they have worked out effective means of interacting with it.

A neat feature that I did notice for the first time as I headed home, but that I know may already have been there, is an ETA to your destination right in the app. This could be quite helpful indeed.

So on the whole, I’ve loved Uber. It works well for me as a good complement to the city and regional buses, as when I needed to take a 1.5 hour bus trip to the Apple Store and opted to do this one-way, and shell out for a fifteen-minute car ride going the other direction. I haven’t heard in a while, but was disheartened by this company’s disregard for people with disabilities and unwillingness to work to stamp out discrimination in response to a suit brought by blind guide dog users who had been denied access. I sincerely hope that they will reconsider their stated position, and will take my business elsewhere if they don’t. I think that on balance, this kind of innovation has done and will continue to do us a world of good.

iPhone Test Post Take 2: on Graduation and Summer Fun

Posted on by John

Hello. I come to you live from my iPhone, as I vacation in Charlotte. Well not a vacation exactly, but more to see my younger cousin graduate from high school.

Wow, that’s always an impressive achievement. I remember doing that eighteen (18!) years ago. How old am I, y’all? The weird thing is I can’t recall which day I graduated, but it had to be either the 22nd or the 23rd of May. The following standing ovation was one of the best feelings I’ve ever had.

Ah, that and college will always be my best days. But reality dictates that I must learn to function within the constraints of adulthood. They are finally becoming more palatable, thanks in no small part to my partner, with whom I have enjoyed the last three months.

We have a few exciting things planned for this summer. Of course, there’s the conference in August, which I’ve talked about a few times. Ah, the stress of setting that up! I kinda feel like the most useless President ever, but so it goes.

Is it any wonder then that I need some nice quiet time by the sea? To that end, we’re going on a trip to Carolina Beach in mid July. I’ve not stood on those oddly shifting sands and listened to pounding surf in at least 13 years. I love the awe of feeling like a little speck in this large universe. I might be mistaken for dinner though by a shark, aaahhh!

So yeah, I have a lot to look forward to. If this Braille display functions as well as it is at the moment, maybe y’all might finally! start hearing from me more. No promises, though. More when I get home.

Conference Prep Thoughts, and Writing Back Out

Posted on by John

Hi. In reality, I have absolutely no time to be writing this entry. There are about ten minutes till I need to skitter down the street and hop onto the bus that will convey me off to my eight hours of enforced confinement wherein I will madly stuff sticks into a box while singing, tapping, and otherwise engaging in activities to keep myself awake. So, apologies for spelling and other errors, as I have no ability to edit till I return. The problem is, of course, that I rarely have time to write anymore at all, but I need badly to get back on this horse!

So, I thought I’d tell you a couple of quick anecdotes about my experience really digging in to try and get the Third Internationan Norrie Conference off of the ground. I’ve helped some with the other two, but this is by far the most I’ve ever had to do in organizing the program.

Well, actually the only thing I know I’ve done right thus far is to get the tour of the Perkins School for the Blind set up. That’ll happen at 1 PM on the 13th of August, the day we register. I’m looking forward to it, especially as I have pondered perhaps trying to work at Perkins someday. Lots of opportunities, but admittedly maybe too cold for me there. Hmmm, who knows.

I’m trying at the moment to see if they can help us by brailling programs for the conference, but have yet to really hear from anyone. One of the most stressful parts of anything is sometimes trying to figure out the proper contacts who will help to accomplish a given task.

I guess the most of it will be coordinating with others and just trying to make sure that we all are able to get things set as they should be. Unbelievably, we’ve just entered the final quarter of the final year leading up to conference time. We seemingly have them every three years, and it still doesn’t feel like the one in 2012 was all that long ago.

I also have a story that I feel demonstrates the vast difference between monied people and the working poor, the latter category being the one to which I belong. It happened as I registered for a hotel room at this illustrious event. $786! Ouch.

Once I was done paying that hefty fare, I was directed to consider joining some sort of travel program with which the Wyndham brand is affiliated.

“First, we’ll ask you a series of questions to determine eligibility,” the guy said.

“Are you happily married, or happily single?”

“The latter”.

“”Do you enjoy a combined income of $75000?”

I didn’t exactly say it, but I thought”I’d ENJOY such an income, but I definitely don’t have it at the moment. So, I got bumped down to the poor man’s travel program, which cost a dollar to enter and $16 per month. I ultimately didn’t choose this one either, because I couldn’t obtain the materials in an accessible format. You could opt out after 30 days if you didn’t like it, but without all of the required info, I felt I wouldn’t be able to make an adequate decision.

So, that’s a little of the fun I’ve been having as the summer months get ready to unfold. I’ll write more and better soon, but at the moment I’d better go! As it is, I might in fact miss the bus. Haha

App Review: EXPRESS Yourself

Posted on by John

I was trolling around in the app store a few weeks ago, in response to one of the Emails that Apple sends out, and found an amazing product that does something no other app has, at least that I’m aware of: it makes the face visible to me! What do I mean? Read on.

First, it never ceases to surprise me the extent to which this one piece of metal? plastic? whatever your iOS device is made of, has brought to my life as a blind person. And yes I know, Android is nearly there, and maybe surpassing iOS in some aspects, but I’ve not yet played with a device running this system so I can’t say what I would think of it.

Anyway, with my trusty phone stowed safely in pocket and Braile display on my lap, I can use programs to read, write, listen to music, and even navigate successfully on the bus. And thanks to some enterprising individuals and organizations, there are even apps that allow me to do more complex things, such as take my own photos, (no guarantees as to their correctness but I can be pretty sure I’m at least shooting the right thing), and read my own mail. All great, life-changing stuff.

But what about that most elemental of human interactions: the ability to communicate. More specifically, that communication which occurs nonverbaly, which studies have repeatedly shown to be far more believed than mere words. While some of this is passed along through other body language cues, much of it happens through that most natural of transmissions: facial expressions. Blind folks prove its innateness in fact, as we too are able to call up a smile, frown, etc when it reflects our inner emotion, or even if we want to kind of fake some inner emotion. These expressions tend to be more believable though, since they are harder to “make up” than spoken language.

Enter Express, a powerful engine that can, through quick analysis of pictures shot via a discretely placed camera, provide unprecedented information regarding one’s possible thoughts, as displayed on that facial window to the soul.

How It Works

The Express app can run in the background and even with a locked screen, so long as it is launched and the camera activated prior to use. If you think you’re entering a situation where you might wanna know what is being unsaid, simply open the app and tap the “Start” button. You are then presented with two options: Constant, or Summary Analysis.

If you pick Constant, the app takes a shot of the face you’re “focusing” on in adjustable intervals, and alerts you through a series of vibrations as to what the likely expression is. The list of vibrations and their meanings can be found in the “Demos” menu. It is important to practice these repeatedly, so that you know what you’re getting when it comes across. It wouldn’t do, after all, to think that she’s smiling at you when you’ve actually made her quite angry!

(DISCLAIMER: The app developers assert that the rendered interpretations are reasonably accurate, but cannot guarantee 100% certainty. In field testing however, very few errors were reported. Use with some caution, and act on this info at your own risk.)

If you choose “Summary” the app will still take pictures of the person’s face, but instead of vibrating regularly it will generate a report of overall mood: how often did they fluctuate, were there sudden changes, and the like. This might be a good idea if you don’t want the person to wonder why you keep vibrating.

“Goodness! Are you just crazy popular or something?”

Equipment/Accessories

You can, in theory anyway, use the phone itself to snap these pictures. However, the developers suggest that this might introduce unnecessary error into the results. How will you know, for example, if she still finds that joke you’ve told for the fourth time amusing, or is just wondering why you’re sitting there holding your device aloft for no apparent reason?

So, for an additional $45.99, the user can get a specialized camera made of a strong, thin material that matches the color of the wearer’s skin so as to significantly decrease visibility. It is fitted with a revolutionary adhesive that bonds to the skin, probably the forehead, at the molecular level, making it water-resistant. No worries though, as it can be taken off by simply scrubbing with a finger in a circular motion, as it responds to a bacterium that all humans carry.

The camera charges using kinetic energy, that which is generated from movement. So if the battery begins to run low and you for whatever reason are unable to engage your entire body, just nod your head a few times. It is recommended that care is used in so doing, though, as this too may alter the interaction and lead to inaccuracies.

“Yeah, yeah, yeah, yeah.”

“Are you actually agreeing with me, or just really sleepy.”

My Final Thoughts

I’ve used this app for about 12 days now, and it has unquestionably changed my life. As I sit here on this warm day at the beginning of April and write this, one of my friends is playing with it, sitting across the table from me and informing me that it reports that I have a big, silly grin on my face. I love it! Now for something to come along that can clean my apartment. MMM.

So, have any of you gotten this thing yet? If so, what do you think of it. If you wanna find it, do a search in the app store for Express, o yes! for iOS (Don’t ask me who decided to call it that, and let me know how it goes.

Job Days No. 3

Posted on by John

Well, it amazes me to look up and realize that I’m already about a quarter of the way through year three at Durham’s LC Industries, my current place of employment. I guess I’ve made it something of a habit, mostly for my own records, to take an annual look at how things are going, and whether I’m making any progress towards where I would like to be. The last two evaluations have been at about this time of year as well, so I figured why not go for it?

First, I ask myself if my morning routine has altered any. It’s amusing to ponder how small changes here and there slowly turn into something quite different from what was, isn’t it?

  • 4:15: Alarm rings, I spend another three minutes checking email on the phone and coming up with every other conceivable thing to view to keep myself wrapped in those warm covers.
  • 4:20: I grudgingly roll out of bed, find clothes, and totter into the warm shower stream. Usually, too-loud singing commences and mingles with the sound of falling water that is largely undetectable to my unaided ears.
  • 4:35: Dressed and with socks on, I plug the phone into my table speakers and rock out to either Pandora, or increasingly, our local stations on TuneIn Radio. I like Pandora, but they tend to play the same stuff too often sometimes.
  • 4:45: After banging dishes around, I make a bowl of cereal, sometimes getting the kernels and droplets of milk onto the tabletop as well. Hey, I wasn’t built to function this early in the morning!
  • 4:57: I scramble around in the fridge to see if there are any sandwich products available, either Bologna and cheese or peanut butter and jelly, (crunchy, gotta be crunchy!). If the former, I have to make a concerted effort to remember not to leave the opened jar of mayonnaise on the counter. Man, I’ve lost at least 12 nearly full jars that way. (Refer to earlier bit regarding morning person status).
  • 5:08: Brush teeth while dancing to a tune in the living room, attempt not to actually sing while so doing as choking on toothpaste would probably not be a good idea.
  • 5:15: Out the door, on way to bus stop. I’ve gotten considerably better at crossing the street now as I know there will almost always be a point when it is totally quiet.
  • 5-35: Step aboard, while engaging random passengers in groggy conversation. I guess more and more people have come to know me with time.
  • 6: Catch second bus, fire off texts and more email with the Braille display as we whizz down the highway, and try to mentally prepare myself for the day.
  • 6:30: Arrive in break room, where I read till the bell rings, calling me to my station around 7 AM.

I guess the biggest difference is that I now make lunch nearly every day. I’m not sure if that helps or hinders me though, as once 12 PM rolls around and that stuff is being digested, I usually have to overcome some pretty powerful waves of sleepiness.

Now onto what I do in there. I still work in Light Sticks, packing ten to a box and vaulting them onto a conveyor belt as I had last year. Master Locks has pretty much reopened now, but I assume I will not return to that department and will just remain where I am for however long I stay at this organization. I’ve sped my production up about four times as compared to where I was, but I’m not sure I’ll ever be as dexterous as the true fliers back there. I guess that’s ok, as long as I no longer have people having to swarm around me nearly all day in order to ensure that my bin doesn’t get too far behind the others. It took me a while to understand the innerconnectedness of that whole area and just what was expected from me, but I think I’ve made pretty good strides nonetheless.

And so the final question: what am I doing to prepare for some other career opportunity. Well, still kind of trying to figure that out actually. I continue to learn and grow as President of the Norrie Disease Association, and especially in attempting to plan for our Third International Conference coming this August. (It’s harder than it looks! So many different things to juggle.) I have had a few at least semi-accomplishments though: successfully contacting two potential speakers/panel participants, getting initial info on a tour of the Perkins School for the Blind, and working with other board members to sort out registration challenges. It’s fun, dynamic, and definitely something that I think could help me down the road. Maybe I’ll work for a nonprofit in some capacity, who knows. I’m chewing on that…

So overall, I think things are going as good as could be hoped for. I’m used to just going in here and doing what I have to do, five days a week, and continuing to work on myself in other ways wherever possible. Still trying to fully sit back and enjoy the ride! Always appreciative of those who support me in doing this in subtle and not-so-subtle ways.

REVIEW: All The Light We Cannot See, by Anthony Doerr

Posted on by John

Because I am reading this book for a fun Facebook club, and just due to it being an interesting story, I thought I would write a short review about the popular book All The Light We Cannot See, by Anthony Doerr. It’s yet another among the pantheon of World War Two era thrillers, a collection of which I’ve read many. I guess this period has always interested me, given that in many respects it was one of the most frightening in human history.

In this particular novel, Doerr chooses to tell the story of the unfolding conflict from two main perspectives: that of an intelligent German who goes on to become a radio operator and locate people who are making “illegal” transmissions, and a blind French girl who lives with her father and eventually her great uncle.

The German, Werner Pfenig, spends his early life in an orphanage with his sister and other kids, barely able to get enough food and about as por as can be. He discovers his love for radios somewhat by accident, rigging an old set that he then uses to entertain all within the house at the permission of Frau Elena, the head of the house. This ability to fix and tinker with some of the most complex systems as well as to master trigonometry, science, and similar fields, soon leads Werner out of the orphanage and to a rigorous training academy that prepares young men to fight for the reich. That these sorts of academies existed is amazing.

Meanwhile, the blind girl who’s name is Marie-Laure, discovers that she has an uncanny ability to solve puzzles. Her father, who works at the National Museum in Paris at the story’s start, enjoys creating these puzzles for her and concealing prizes within that she usually obtains with eye-popping speed. He soon teaches her tricks to figure out navigating her environment, such as counting steps and other landmarks. Finally, he constructs a model of the city that she can traverse with her fingers to learn where everything is in relation to everything else.

Shortly after the novel’s opening, the French family are forced to flee Paris to a seaside fortress city called Saint-Malo, where the great uncle lives in a six-floor house and has remained inside for many years due to mental challenges, probably definable these days as PTSD, suffered during the first World War. Marie-Laure is thus called upon to re-acclimate to these new surroundings, which she also does with the help of another model constructed by her father. Once she gets good at moving around, she begins to shuttle messages from the bakery to their house for broadcasting on the radio hidden in the attic that has not been confiscated by the invading Germans.

Werner spends a few years honing his skills within the academy, and when he is supposedly only 16 years of age they decide to bump his age up two years so that he can go ahead and begin serving his country. He has many misgiving about this service as he gets farther into it, leading to increased depression about life in general.

The story is told in a unique way, I would say in parallel rather than serial fassion. We jump back and forth between the early days and those leading up to, and those on and following August 9, 1944, the middle period which Werner calls the “Border days”. This creates in the reader a sense of detachment from the latter experiences as they are initially revealed, but slowly dawning understanding of their significance and origins as the previous period concludes. I am not sure how to feel about this arrangement, other than that perhaps it causes me to miss some of the stuff that occurs later and dilutes the response I would have to it. I suppose this is the intent.

Alongside the larger plot of the war itself is a smaller plot where a soon-to-be cancer-ridden German Sergeant Major vigorously hunts down the fabled Sea of Flames, a highly valued diamond that is said to confer ever-lasting life on its holder but also to cause serious problems for those who are close to the holder.

On the French side, I would say that Marie-Laure is generally shown as a competent, well-functioning blind person. As usual though when sighted people write about such things, way too much emphasis is placed on the idea of counting steps to get around. I do this only in very rare cases, and would say that it would mostly be an impractical way of measuring distance anyway. Can you imagine at every turn resetting your “meter” to zero, sometimes having to them go up to 100 or more in order to find the next turn? I might take steps of different sizes, or someone may call me causing me to become distracted. No, most of us do not do this regularly. We just learn to notice changes in the environment; sidewalk, grass, etcl and remember where to make the turns. It’s easier than it sounds. But I do at least like that Marie-Laure is shown being capable of independent functioning.

As usual with my reviews, I haven’t actually finished the story. I’m about 79% of the way through currently, but for the most part I like it. It took me a while to adapt to his writing style, which often omits commas where they should probably be. This creates a feeling of rush or panic, which I gather may also have been intended. I think though that this may have been the most nounorthodox examination of said war that I’ve ever read.

CHANGE PART II: On a new connection

Posted on by John

Remember in my first official entry of 2015 how I alluded to big changes happening both in my professional and personal life? And I didn’t really go into detail about the personal variants? Well, the big news is: I now have a girlfriend.

Out of respect for her privacy, I’m only revealing some minimum facts about her, because I believe that everyone has a right to her privacy. But, I thought it would be fun to share the story of how we came to be, as it’s cool and makes me happy.

The neat thing is, we both run in the same circle of friends but hadn’t really talked to each other before. We were to meet at the Christmas party that took place this past December, however she was unable to attend due to catching a common cold.

“Ah!” I thought to myself. “Oh well, this is where good ol’ Facebook will help me.”

I decided to pop out a message to her a couple days after the party, and we then began some basic chatter. She checked on me when I arrived in Louisiana for my vacation, and I then sent her another message once I got back home.

What really got us going was when I opted to ask if I could call her on January 9th. Our first conversation was at 11:30 PM on that cold Friday night, and because it was already fairly late we kept it to just under 30 minutes. After that though, we had a series of hour-and-a-half long conversations during which I worried about sailing far beyond my meager allowance of 450 cellular minutes. (I called to change/upgrade that plan, and ended up cutting my bill in half while getting unlimited talk and text with the same amount of data with the Verizon Loyalty plan. Why hadn’t y’all told me about this plan long ago!)

Anyway, we discovered that we had many things in common. Chief among these is our enjoyment of music, and particularly 90’s R&B. In one conversation, she clicked on different songs in her little collection and we reminisced on the things we were doing and experiencing when that song was popular.

Other commonalities are that she is quite intelligent, somewhat quiet, and very open to listening and helping others. Not necessarily saying that I am the latter, but well I’d like to think I am?

My favorite thing though is that she gets, often responding in kind to, my weird sense of humor and weirdness in general, probably due in part to her enjoyment of working with children. I think that one must be able to understand this if one has any hope of tolerating me. It makes our conversations a lot of fun.

We kept talking and talking until our first in-person meeting on Valentine’s Day. Ah, that day which is already preloaded with all sorts of hallmark expectations. But we enjoyed it, picking up some food from a Chick Fil-A drive-through and crashing on the couch. We first watched the game between the University of North Carolina and Pittsburgh, which UNC lost handily. The only really important thing we don’t share in common, and something on which I am still working ha ha, is our allegiance with regards to the UNC-Duke rivalry. She pulls for the Devils! Ah.

We also watched an X-Men movie that I think had come out in 2012, as she enjoys that sort of stuff. I think that meeting was all both of us had hoped it would be.

Then this past weekend, she slogged up here through the insistence snice and we just hung out again in my little spot. This is when I finally managed to get over my shyness enough to ask about what was going on between us. I am happy, and I feel that this has a lot of potential. Certainly I can already sense myself feeling more connected to things in a way that I hadn’t realized I was lacking. All people wish to be part of something bigger than themselves, right? I know I have plenty of work to do on myself to really be the kind of person I would like to be for her, but I am committed to doing my best to get there. We shall see.

So yeah, the great promise of 2015 still unfolds in new, unanticipated ways. Hopefully things will continue to head on the up and up as this crazy Winter blast finally begins to get out of here! I hope that whatever is happening with your year has been all you’ve hoped for and more as well.

Well The Weather Outside Is Frightful

Posted on by John

And the snice is piled a mile high, And since I can’t go nowhere, (I don’t care about grammar, because in my head I sound like Louis Armstrong) Let me read, let me read, let me read!

Ah, it’s already been way too long since I last darkened these pages with virtual ink. I suppose that’s mostly because I just haven’t been able to think of anything worth printing. I know though that I need to maintain some kind of presence here, so that you, dear reader, will not forget me. Plus, I’m about to get got for about 150 bones in order to continue using blindtravel.net. For that price, I should try and make it worth it, right? So bear with me as I try and write myself out of this latest block.

And on blocks, Old Man Winter decided to show up and throw a bunch of ’em at us last week. Whatever that stuff was, snow? ice? I call it “snice” confined me to the inside of my beautiful, well insulation-missing, electrical heating can barely keep up, 500-sqft apartment from Monday when I got off of work at 1 PM till Friday when I was finally able to return to said work at 6:15 AM. And o man, that was some of the coldest cold I’ve ever known, as we hovered around 5 degrees F with sub-zero windchills. And slide slide slippedy slide! All the way to the building.

During that prolonged in-between time, I had mainly books for company. I completed Kindred, by Octavia Butler. Often cited as the first work of science fiction by an African American woman, it revolves around someone who keeps getting snatched from her comfortable life in 1976 to varying times during the 1800s, whenever her White ancestor needs saving. These journeys back are frought with danger, as this black woman ends up on a plantation and has to basically become a slave in practice. While much of it is kind of sad, there are also interspersed some bits of comic relief. I enjoyed it overall.

I also read another Science Fiction, well ok maybe this one was more Fantasy, whatever it is that distinguishes those categories from one another, called Don’t Fear The Reaper, by Michelle Muto. Another of my indie Twitter authors, she writes a novel about a young woman, well a teen-ager really, who decides to take her own life because she can no longer stand being without her twin sister, who had also lost her life due to horrible circumstances that we find out about later in the book. When she “comes to,” she initially thinks that either she had been stopped before completing the attempt or she hadn’t gone through with it at all, but this turns out to be incorrect. She has instead entered another plane of existence, inhabited by “earthbounds,” those stuck in purgatory here on this planet, angels and demons, and reapers, the individuals who are charged with liberating souls from the dying body. Reapers also have scythes, literally hellish weapons with which they can whack demons and villainous earthbounds and vanquish their souls, in a puff of smoke and unspeakable pain, to the hotter environs below. This book also provides comic relief, in that the ghosts hitch rides with people in order to reach their destinations by simply sliding through doors and taking a seat inside of the vehicle. And the next time your engine sputters to a stop on the road, well maybe they are just trying to get out. This was an interesting, speculative read on the nature of suffering, why some of us take that final action, and whether this in fact relieves us of our pain. Of course it’s fiction, but it does stimulate the thought process.

Of the eight books I’ve completed this year, half have been Sci-Fi. I don’t expect that percentage to hold, but one thing I do enjoy about the genre is the ability of those stories to make you examine and ponder your surroundings in a new way.

And I guess that’s all for now. Y’all, when is Spring coming! Hopefully soon, hopefully soon.

ACCESS: It’s More Than a Device

Posted on by John

As I go about my day-to-day existence with this great new tech that continues to come out and change things for me and so many other blind folks, a disturbing thing is starting to occur to me. Many of our older members are rapidly being left out, and if they actually get something it’s either poorly designed or they receive inadequate training in its operation.

Take for example an individual at my workplace. I don’t know her whole story when it comes to blindness, but I assume she’s been blind for an extended period. Or maybe not, who’s to say.

If so, it would be kind of odd for these things to continue to happen to her. It seems that she keeps getting stuff that she finds hard to work, for whatever reason, and when I go to help her, I’m not at all surprised that she struggles to take advantage of her tools.

First, she has this really tiny cell phone. Oh, it does speak a bit when opened, I think maybe one of those that you can kind of issue commands to. But, the buttons to dial, start, and end calls are so tiny that even I and my fairly nimble fingers can barely distinguish where one stops and the other starts. She will in many cases summon someone at break time who then helps her to place needed phone calls.

Then today, she asked me if I would set her watch. Ok, sure. The watch tells the time, but only really beeps when put into the settings mode. I wish it at least said “Entering Settings,” or something to that effect. And when learning which buttons to press, I initially caused some sort of song to play. I guess it was an alarm? I did get the thing set eventually, but yeah it would be tremendously frustrating for a person who maybe doesn’t have as much of a handle on tech to figure out.

See, stuff like this is why I had thought about going into Rehab Counseling back a few years ago. Too bad I’m not really cut out for that, but I digress. Now, I grant that some of these issues may be due to the consumer, and how much he/she is willing to learn. But I also know that many of the folks who are charged with ensuring that blind and low vision people have what they need to lead as independent a life as possible just slap something into their hand and say “here” without evaluating the fitness of device and person. If this is done, then in many respects the person may as well not even have the piece of equipment for all the good it’ll do them.

I guess there isn’t a whole heck of a lot I can do about this situation, except to bring it to the attention of the five people who read these words. I also hope that device manufacturers keep this stuff in mind, and make their information more readily available to even the most low-end user.

Truth be told, these days I’m starting to become more concerned even for those of us blind folks who are more proficient and can navigate iPhones and other smart mobile technology. As some have pointed out, and I can see this becoming a bigger and bigger problem, as these little machines become more computer-like, application developers are creating “prettier” apps without regard to whether they still maintain functionality with the onboard screen-readers. I’m looking at you, Twitter official iOS app which just lost Braille display support as the edit screen can no longer be easily accessed via swipe with VoiceOver when inputting a new tweet.

So, I hope we as individuals, as well as large consumer advocacy organizations such as the National Federation for the Blind and American Council of the Blind continue to apply pressure to these guys. Because just as quickly as we’ve gained access to all this revolutionary tech, we could lose it.