Tag Archives: blindness

NIB 2024: Arrival

Posted on by John
Me standing near the Washington Monument and Reflecting Pool

And so it begins… This year, as I’ve noted, I had been invited to attend the annual conference of the National Industries for the Blind in Arlington, Virginia, as LCI had awarded me Employee of the Year. Well one of them, another individual with whom I’d actually done some training as it happens, also received the designation. I was allowed to bring a guest, so my wife came with me.

The good news for us is we didn’t have to leave super early. Our American Airlines flight from Raleigh/Durham International Airport to Regan National Airport didn’t depart until Monday October 14 at 10:45 AM. Having prepaid for parking the night before, we loaded the car with bags packed to the gills for our weeklong trip and headed to the Economy lot. A shuttle arrived shortly after 8:00 AM and took us to the terminal, where we then had to hoof it with those heavy bags and I was sucking air by the time we reached the check-in counter.

“Would you two like to each check one of those bags for free?” The woman behind the counter asked. I have never been so relieved to hear anything in my life. My newly acquired briefcase (I had to look businesslike, time to shed the backpack) felt light by comparison as we continued onto the security checkpoint. This was my first time flying since… well, 2020, and one thing I’d forgotten was how annoying this process could be. Or maybe my patience has just shortened over the last four years. It was belts off, shoes off, Mantis braille display out, iPhone out, and oh I forgot to take off the Apple Watch. Oh, well. They did two inspections of my stuff, having a little trouble unsurprisingly working out exactly what the Mantis might in fact be. It looks like a computer keyboard, but… where’s the screen! They also had to dust my hands I guess to see if I might have some kind of residue on them.

Anyhow, once I put myself back together again we made our way to the coffee line as my wife got a free one with the parking reservation and I wanted some in preparation for a long day.

The rest of the wait was fairly uneventful, nearly 2 hours because hey it’s better to be early than late. I thought someone else from my employer would show up, but as we sat there in the terminal no one did.

“Now boarding American Airlines Flight 5545, with service to Washington Regan Airport.” We make our way to the line for preboarding, as usual, and my wife tells the gate agent I am blind as they initially say we are not eligible to board yet. We are on an extremely narrow-body Regional Jet, so have to just about turn sidwways to make our way to seats way back on row 20. I learned something new about airplane seat configuration, too: when I first saw our tickets, I noticed it said 20A and 20c.

“Wait, someone’s gonna be sitting in between us?” I thought. But no, there are no middle seats on this aircraft. So I assume any window and aisle seats will be A and C, and F and D respectively. The middles, if there, will be B and E. Interesting stuff, if you’re a nerd like I am.

We took off pretty much on time, shortly before 11 AM, and had barely completed our climb before we began descending. We mostly just sat there and made small talk, as you really didn’t even have time to get anything out. I suppose even with those security hassles, getting there that quickly still beats driving.

As it turns out, one other person from LCI was aboard but he couldn’t catch us before we got to our seats. He did get an Uber for us all and we piled in to make the short jaunt to the Hyatt Regency Crystal City, which is an airport hotel. It took them only a few minutes to get our room ready, so we ventured up in the ear-popping elevator to the 17th floor to deposit our luggage.

Flying, even a short distance, tends to make one hungry. So the next thing we did was locate the hotel’s featured restaurant, Cinnabar. I’m not really sure why it was called Cinnabar, as it is a full-service, sit-down restaurant. Their food was delicious but expensive. I had a chicken sandwich with cheese, mayo, and tomatoes. I guess I ate too many of the fries though, as my wife regularly chides me for doing, because I couldn’t finish that entire fairly large sandwich.

Not much else happened prior to dinner. We went and officially checked into the NIB Training Conference and Expo, collecting our lanyards and my Employee of the Year swag. We also had to attend an Employee of the Year orientation at 3, where we discovered how many of us there were (like 70 people). I was excited, but parts of me became overwhelmed quickly because of my hearing problems among such large crowds.

And speaking of crowds, prior to dinner we dropped in on the Welcome Reception. This was open to all conference attendees, and it sounded like one full-on roar as we huddled in the hotel’s basement-level vault. I stood in a corner and sipped on a Corona, feeling nice and reflecting on how I got here.

And finally, there was dinner. It was a simple affair, served buffet-style, with chicken, broccoli, and potatoes. There was supposed to be a Murder Mystery presented along with our meals, and I think it did happen later, but it took them a little while to get everything together. This is because it was to involve the audience in some kind of who-dun-it, where they acted out parts based on their role in the so-called murder. My wife and I didn’t stay to hear that part though, as the day and all its activities had caught up with us. We again rode that elevator into the sky, headed into our room, and called it a night.

More in Tuesday’s post, including a description of the room and some of its features.

All Aboard for a Much-needed Weekend

Posted on by John

Do you have that person in your life who always gets you, no matter what? The one who, because of similar experience and an upbringing that involved many of the same challenges is someone to whom you always look for advice or just to vent. That person for me is my cousin: technically a year younger than me but seeming older in many respects.

For our early life, really until mid-20s, we were never that far apart. Both of us are totally blind and have significant hearing loss due to a condition called Norrie Disease, so we have to work hard just to fit in to this world. We went to college together and lived in an apartment (albeit a slum) for six years.

Then life rolled on, and we were both fortunate to marry wonderful women. That has though necessitated changes in our relationship, as is common for all adults really. Now, we usually see each other maybe three or four times a year (with the time from January of 2020 till May of 2022 being the longest we didn’t get to spend time together due to Covid).

Anyhow, that’s slowly, finally, starting to change. This past weekend, as my work life ramps up and I feel increasingly nervous about my hearing challenges, I decided to see if we could just have a marathon Saturday watching sports and talking about nothing and everything as I like to do. My cousin and his wife agreed to allow my visit, so I purchased round-trip Amtrak tickets from Cary North Carolina to Charlotte.

I had to get the 5:43 Carolinian train, being fully aware of likely delays as it makes its way all the way down from New York City. And delays indeed happened, with emailed announcements throughout the day that the train was getting later and later.

I had Lyft take me over to the Cary station after a long day at work trying to hammer out the material for our upcoming Microsoft Excel workshop. The building was cold, and I found myself wishing I’d chosen to stay outside in the beautiful Fall-like weather to wait. I sat, snacking and reading, and tried to make myself take a break so all of my devices would make it onboard with a little life left.

The train finally arrived shortly before 7, and as I feared I was given an aisle seat so couldn’t plug in as easily. I always feel weird about asking my neighbor if I can stretch the cord over their legs.

The ride down was uneventful, and we arrived in Charlotte around 10. Knowing I would want to pick up food on the way to my cousin’s house, I decided to try downloading the Jack in the Box app to see if I could place an order in advance of getting there. I get Jack in the Box whenever I visit the Queen City, because we don’t have any of those in our area. And this would have worked, if I had already entered my payment method or at least set up Apple Pay. Trying to do that at the last minute just… didn’t work. Choosing the menu items I wanted though was accessible. Anyway, the driver just rolled me close enough to the Drive-through window to put in my order and I collected the food and headed to my cousin’s house. I do love this tech that makes it so much easier to independently move around and run errands.

Because it was already nearly Saturday by the time I finally arrived, we just stayed up a little while listening to the NFL game in Brazil and scarfing down the food. Then we retired for the night. I’d already understood that we would mostly be spending Saturday together anyway.

Knowing these folks wake by 8 AM, I was crawling out of bed just as the smell of bacon and eggs permeated the air. My cousin texted me, and I headed on down to sink my teeth into it. A small cup of orange juice and a big, piping hot mug of coffee completed the morning.

As far as sports go, our Alma mater UNC Charlotte (they call themselves Charlotte in the sports world) played, and were pretty much slapped around by, the North Carolina Tar Heels. Bowling Green University gave Penn State a scare, and number 5 Notre Dame were nipped by the Northern Illinois Huskies in an awesome upset. The prime-time game, North Carolina State University versus the University of Tennessee, was a bust as State were dragged all over Charlotte’s Bank of America Stadium.

While the games played, we chatted about our roles as Assistive Technology Specialists. We also noted the recent availability of high-powered, AI-driven Phonak Hearing Aids (NOTE: those may or may not be the right ones). Anyhow, I’m considering trying to get those, as they’re supposed to be really good at filtering out background noise. I have a hearing test (Oh fun! Except not), scheduled for September 18th, at which point I will begin this conversation with my audiologist. Where the money will come from for such a thing? Well… we shall see. No doubt I need it though, to help my rising career.

After our day of fun, we got food from a restaurant called the Skrimp Shack. (They mean Shrimp, but ok haha). I had a giant chicken “sammich” that I could not eat entirely, and a big styrofoam to-go plate of fries (the small is really small, the large is really large, no in-between). The food was really good, though.

And that was the crux of a great Saturday and weekend. I’m writing this as we speed back toward Cary on Sunday morning from 6:45 till 9:45. A bit of amusement: as we departed Charlotte, the conductor said we would be arriving in Cary, our next station stop, in 25 minutes. Cary takes three hours to reach, as suggested by the time I just posted, and it is not our next stop coming out of Charlotte. He meant a town called Kannapolis. I can only assume that it was too early in the morning for him, as it is for me of no or very little sleep. Although for some strange reason I feel hopped up on energy right now. Let’s hope that lasts till my Carolina Panthers (NFL) play the New Orleans Saints at 1, and hopefully start this season off right. You can’t get much worse than our 2-15 record the previous season. I do hope more of these restorative weekends are in store, and that you are able to find a way to lift your spirits when needed as well.

UNDERHEARD: Eating Out While Deafblind

Posted on by John

If you are like me, you wonder how and among whom the restaurant custom started. The idea of eating out in a place humming with activity, where all sound seems to merge into a full-on roar at times and you are left at the mercy of the wave as you, hopefully, enjoy some good food.

And of course before continuing, I fell down a rabbit hole and discovered, via a website on The History of Restaurants that they were supposedly started in France in 1765. I cannot attest to the veracity of this story, and wonder if some other culture might also lay claim to their origins. Anyhow, it’s good food for thought.

However they started restaurants are a venerated tradition of U.S. holidays and continue to bounce back after the dark days of Covid. Well, sort of. I accompanied my wife, her parents, sisters, and my niece and nephew by marriage to Red Lobster. That particular establishment does not seem to be faring as well, with many having gone into temporary closure and the business as a whole in bankruptcy. I guess they served too many shrimp.

We went to celebrate Father’s Day on Saturday, as is usual for us. It’s often less crowded on this day than if we wait till the day of, though going to eat at Fullers, a delicious local (to Fayetteville, N.C.) eaterie that serves just about everything Southern you can think of for Mother’s Day on the Saturday before, the place was brimming. I joked that it felt like someone was drilling a hole in my brain, because there’s just no really good setting on my hearing aids to help me handle such ruckous. But I made it through, as I always do.

Red Lobster, by contrast, was relatively quiet. We arrived at just prior to 2:00 and departed just after 4:30. I conversed some with those in my immediate vacinity, and ate my fill.

Ok first I had one of those delicious cheese biscuits, which according to my last doctor’s visit I don’t really eed to be eating. But hey, I offset that with a side salad. When I chose to order that salad, I expected to get basically a bowl of lettuce with bleu cheese dressing (another of my guilty pleasures). But actually it was loaded. Little flecks of meat, another kind of cheese (I’m not food afficianado, though I did apply to a food magazine as editor and they told me my resume was good once), croutons, and other stuff. Hey, my wife and I joke that my food critique is as follows: Real good, Good, Ok, not good, nasty! So there you go. Anyway, I had to stop eating before I became full off just that serving.

As we broke bread, talking about work, home, and life, the main course arrived. As I had on my previous Red Lobster visit, I’ve only eaten there twice if you can believe that, I had stuffed flounder (real good) with some kind of seafood sauce) and fries. I decided to walk on the wild side and went for a glass of mango lemonade, (good, I guess)? I don’t eat a whole lot of seafood, but I suppose it can be good on occasion, and I know it’s generally healthy as well.

The last sort of interesting thing I want to think about as a blind person is how we handle visiting the restroom. I needed to go before hitting the road, and it just made me think about my general strategy for finding what I need to find in there. When I enter through the swinging door, I immediately move toward the right wall and make my way around in a counterclockwise direction. This is because, at least in most of the men’s rooms I’ve seen, the sinks to wash hands are just to the left of the entrance with toilets in front. If I move in that direction, I usually manage to locate a stall, exit it, and get to the sink without any embarrassing mishaps. This time? Well, it was sort of strange as I did bounce off of someone as I made my way to the sink. Naturally, he then began providing assistance. It didn’t go completely sideways at least.

So there you have it, a little look into my mind as I work to negotiate the social norms that surround a typical holiday in my family. I enjoy it mostly, and by this point I know that most of the concerned parties know about my challenges and do not think any less of me. But sometimes having these hearing problems can be a struggle. Like when I find myself on a paratransit vehicle with a new driver who loves to talk, but I can’t comprehend him over the engines, as happened recently. I’ve learned though that the best, and really only, thing I can do is make the other person aware of this and take it as it is. More of my shenanigans as the summer time unfolds.

Why a Blind Man Watches Spacecraft Launches

Posted on by John

And yes, I used the word “watch,” as it commonly refers to consuming video content. I “watch” TV or YouTube, or what have you.

I tried to watch the launch of the new Starliner spacecraft yesterday, but unfortunately they still haven’t been able to get it off the ground. Of course because it is a new machine, I’m sure they have to take every caution in putting it into the skies. But I find it particularly interesting to catch it, as this will be only the sixth different American craft created since the U.S. space program began.

My earliest memories of humanity hurling things out of Earth’s atmosphere are the same as many of my generation: the very sad Challenger space shuttle disaster. Because a teacher was going into space, all of the schools had us tuned in to watch this spectacle unfold. I think I only partially understood what had happened that day, because I was only 6 years old. But it gave me my first taste of a desire to explore and the dangers that could come with it.

This desire was deepened, oddly perhaps, by the little-known sequel to Charlie and the Chocolate Factory (one of my all-time favorite books by the way) called Charlie and the Great Glass Elevator. In this one, Charlie ends up riding the elevator, I think from the factory, into space where he encounters aliens called Vermitious Knids. I guess they were a sort of stand-in for bad kids? Looking back on his writing, it seems maybe the author Roald Dahl didn’t like kids too much. Anyway, I remember the aliens smelling like eggs, and I was rapt by this nonsensical story. It even awoke in me a need to meet people not of my background who brought different perspectives and lived different lives.

As I got older I watched many of the shuttle launches, always feeling a thrill as all that audible power thrust them up, up, and away! I’ve read nearly every story written about the Apollo missions, and was most focused on how the astronauts felt as they left our planet, a slow ride at first with increasing G-force and speed until suddenly you go slack and float off of the couches. How I would love to experience that.

My interest in space and space travel went through the roof (clouds?) with the Apollo 13 movie starring Tom Hanks, which I got to catch in theaters. It was even more awe-inspiring to hear that power projected through a good sound system. And obviously getting those folks back home safely after everything unraveled is one of the best examples of the good we can do when we choose to work together.

Fast-forward to 2011 and the second-to-last shuttle flight. I sat in the lobby of my graduate school department building, feeling ho hum as I faced an insurmountable workload and had no clue how to deal with it. So I took a break and listened to the shuttle blast off. When I finished, I met a wonderful Lebanese woman who helped me get through that last, bumpy year and a half. I have an entire entry about her if you’d like to read it, but it again showed me the power of meeting and getting to know people from different backgrounds.

And as we are still stuck in low-earth orbit, I have read and am reading some sci-fi novels that take me many parsecs (I learned that a parsec represents roughly 3.26 light years) away and years into the future. The Noumenon series, by Marina J. Lostetter, is one of the most imaginative series I have ever read, and I’ve read many of them (the Frank Kitridge Mars series is also excellent). In Noumenon, she has them awake while traveling incredible distances rather than being frozen. I like how she takes care to represent all kinds of people, including multiple cultures and even people with disabilities (a deaf woman and one in a wheelchair play significant roles.) The books, three of them, are long but worth it. So if you get the chance, check them out.

So yeah, my interest in spacecraft launches and space travel overall stems from all kinds of experiences. Hey, maybe I’ll do as I told my mom and be the first blind man on the moon (I’ll plant my cane there!)

IN CASE OF BREAKAGE: A Needed Accessory for My Mantis

Posted on by John

First, I shall note that I’m not getting anything for promoting this website because… I’m not that big of a deal. Yet! Ha ha. I’m just writing about it because the product I acquired is something I’ve been needing for a long time and I figure that someone else may need or just want it too.

I listen to a biweekly podcast called Mystic Access. It’s run by a blind couple who also oversees a company that makes tutorials on blindness technology products. On their show, they do demonstrations of some of these products, along with many mainstream solutions, and talk about some of the challenges and opportunities that come with living as blind individuals.

As I listened a couple weeks ago, I heard them mention having acquired a case for the Mantis Q40 from a company called Turtleback Low Vision. As an assistive technology training specialist, I have to carry my Mantis up and down my hallway at work. To this point I had been holding it against my body in its default case, which is little more than a plastic shell affixed to the back, and hoping not to drop it. I also like to take it with me on impromptu car rides and would prefer not to have to lug my backpack on these often short journeys. So intrigued, I took a look.

This case does cost a pretty penny, $145 worth of them in fact. But as you may remember in my post about the NLS display, I dropped the Mantis in my office, broke it, and had to shell out a cool grand to have it repaired. So my calculation is that having a case that adequately protects the unit and allows me to move around easily with it was worth the investment.

And thus far it definitely has been. I ordered the case on a Wednesday and was told via the auto-generated email that it would arrive the following Wednesday. It actually got there by that week’s Saturday, only 3 days later. It’s a sturdy-looking leather case with a rubberized bottom that keeps it from shifting when on a table or even on my lap. But what makes me happiest is there is a good-sized zipper pocket on top of the case into which I can fit my iPhone and even my hearing aid batteries. So I no longer need to take the backpack everywhere I go to make sure I have my most critical items. I only wish the USB port area were a little more enclosed, as I worry that in a significant downpour the ports might be in danger. But this isn’t a really big deal as I could just bring along a waterproof bag in the hopefully rare cases I find myself in soakers.

And finally, I like the magnetic clips that hold the case shut. Older cases often used Velcro, which wears down rather quickly. With the magnetic option, this isn’t a worry. I would say overall that I have been very happy with this purchase.

#GAAD: On CAPTCHA

Posted on by John

Today, May 16, is Global Accessibility Awareness Day. Its purpose is to increase awareness of and understanding around why sites and components of sites need to be accessible. Of course complete accessibility refers to much more, ensuring that all areas of life are available to persons with disabilities. But I think this day has a primary focus of digital and web accessibility. In that spirit, I want to show what can happen when the various accessibility issues have not fully been addressed.

I made a post way back in 2006 in Live Journal, (remember that? Almost 20 years ago now!) In this post, I railed against CAPTCHA, which stands for Completely Automated Public Turing Test to tell Computers and Humans Apart (Taken from This site.) First, that’s a mouthful. And second, it has been the vain of my existence since its inception. In those days, those of us who were totally blind were pretty much left out of the experience entirely. This meant that, for example, we could often not sign into websites that had put CAPTCHA in place, because we couldn’t “type the characters you see on the screen.”

Eventually, and I’m sure with a lot of elbow grease and advocacy, web developers began to understand that there were a significant number of individuals who were being barred from accessing their products because of this spam-fighting tool. So they answered the call by creating audio CAPTCHA, where words or numbers are spoken aloud, often with some kind of noise in the background to make it harder for computers to pick up what is being said. The voice is also usually not completely clear. And this works for a lot of totally blind people, meaning they are able to “pass the test” and get done whatever it is they are trying to accomplish.

The problem? What happens if you have little or no hearing and partial or total blindness. I am totally blind and significantly hard of hearing, so even the clearest spoken language can be hard for me to follow. If they deliberately make it hard to understand what is being said, I will be lucky to get, say, two of the five words they say correct.

I had this happen just yesterday. While trying to complete a recovery of my Microsoft Outlook account (I locked myself out because I couldn’t remember the password, another issue about which I could write an entire entry,) I encountered one of these lovely CAPTCHA. I switched from visual to audio and must have tried eight different sets of words before I gave up in frustration. I’ll have to get that sorted eventually, but at least I’m still receiving email to my account. I assume it will be lost if for some reason I log out of my Outlook.

Ovviously, this can cause much bigger issues if one cannot access a site that uses either visual or audio CAPTCHA, and as far as I know deafblind individuals don’t really have a way to get past it without sighted assistance. I did try to have some of the various AI solutions locate and read the characters on the screen, but I don’t think they are easy enough to discern.

I guess I’m wondering why we even use these methods, in the age of two-factor authentication. Maybe a code could be texted to a user’s phone? I know this would not be a complete solution as some folks do not have phones that can read text, but it would allow many more to have easy access.

Alternatively, I’ve seen some sites that ask relatively easy math questions for the person to solve to prove their humanity. Whatever the case, I hope people continue to be aware of this issue and the very real stumbling block it puts in some people’s path.

SHIFTING SANDS:My Much-needed Trip to Myrtle Beach Part 3

Posted on by John

Friday, May 3. I awake a little after 8 AM, because I love listening to a local radio morning show as this is one of the best ways to get a feel for the area. I can kind of simulate this on my phone with apps like OoTunes, although it’s not quite the same given that I just go in and select the city I want and find a station. And it can be hard to tell if the station is actually in Myrtle Beach and not, say, Wilmington North Carolina. Ah, sometimes I miss my good ol’ analog walkman. I suppose I need to poke around and see if I can find something that simulates that closely enough.

Anyhow, I find a station, Mix 97, that I think is local to Myrtle Beach. The only thing they really talking about was the latest celebrity gossip, but this probably stems from the fact that I didn’t find it till nearly 9. The earlier you catch the show, the better.

We head out of our hotel room just after 10 to one of our Myrtle Beach favorites, Hot Stacks. It’s an area chain of breakfast restaurants that, as far as I can tell, only operate in Myrtle Beach and North Myrtle Beach. On this trip, I go with the sausage omelet and plain grits, eschewing something they have called Trash Grits. I would get these grits on Saturday, and they were actually much better than the plain grits as they had sausage gravy and flecks of some kind of meat in them. I joke with my wife that if they’d shredded napkins and straw wrappers into the grits, we the customers couldn’t really be surprised. We have that weird sense of humor. Hot Stacks also has delicious coffee, nearly on par with that found at Waffle House.

After eating, I get to explore again with my GPS apps as my wife heads over to the Carolina Pottery to check out some arts supplies. She’s made quite a business making rag wreaths, wooden signs and the like in particular and selling them via Etsy and Her website. If you’re into that sort of thing, check it out. At this location, she finds some hard-to-locate ribbons.

After a short jaunt back to the room to get ready, we head down to the beach with my cousin and his wife for the best part of the trip. The sun is dealt out in just the right measure, with clouds thrown in so we don’t become too toasty. My cousin and I sit on the shore and chat about our similar fields of employment. He is also an assistive technology training instructor, as many of us blind folks fortunate enough to have good jobs are. I just hope our work is starting to give people the skills to open more doors, though the larger change must happen at a societal level, as still too many think non-working eyes means incapable of work.

Anyhow, our wives frolic in the water as the tides roll in. Mine says she is nearly knocked down by a big wave and decides to migrate inland. I join her briefly in the surprisingly warm surf, heard the news say it’s unusually warm which portends a bad hurricane season. Let us hope not.

We wrap up our time waterside in a deliciously warm hot tub. Only I, genius that I am, neglect to take off my shirt as I enter the water. This made for a fairly cold, drippy walk back to the room. Y’all, I’m not the sharpest tool in the shed.

Beach time is chill time, so we sprawl on the couch a bit while watching the news before heading out for supper. We join our other couple for dinner, tonight at Giant Crab. They mainly have a buffet, which is kinda pricey at $48 a plate. But it is also pretty good. I have two crab cakes, two servings of mashed potatoes, mac and cheese, and shrimp. As we eat, we all allow some of our unique marital inside language and jokes to come out. This is one of the joys of being with someone for a long time, the unusual way we come to understand the world and create our own world.

And finally, we head to my cousin’s room on the 16th floor, where we spend a little more time on their balcony and then inside of their much nicer suite. The balcony is up so high that the ocean is a little more muffled. And that cool breeze starts to get to me after a while, because yup, no long-sleeved shirt. But overall, the night and my trip were just the vacation I needed. They help to reset my perspective as I continue to try and help people broaden theirs.

Freeing Refreshable Braille for More Access

Posted on by John

Many in this era worry that the advent of digital audio technology will mean the end of braille as we know it. And there is already some truth to this, as very few totally blind people know or read braille as it is. But and I’ve seen this frequently in my training, those who depend heavily on audio to consume written content often are less able to spell correctly, which may well affect their ability to gain employment. Given the degree to which the cards are already stacked against us when it comes to getting jobs even without this challenge, we need to gain every advantage we can in any area.
These days, the answer to being more able to read materials in braille without having to produce the paper and take up the space this medium requires is to use a refreshable braille display. I’ve had a few of these devices, from the Braille Lite I got way back in the late 90s during my college career to the Brailliant BI 40 received from the I Can Connect program for deafblind individuals. And in 2020, I of course got the Mantis Q40 display I’ve written about a few times in this journal. And each of those devices opened up more of the written word in ways I could not have imagined.
The problem with these displays is and has been their expense. Most of us blind folks can hardly afford $2, 3, or $4,000 to get even a low-end display. Happily though, at least in the U.S, the National Library Service for the Blind (NLS) is making refreshable braille available for any eligible blind individuals. You have to be enrolled in the library for services, as I am, and call your regional library to request one.
There are two models of NLS Ereaders, as they are known: one provided through Humanware and another through Zoomax. I think you get the brand of reader that your library has available, so I received the Zoomax machine.
These models contain 20 braille cells, which is as much space as I had on my Braille Lite but only half the 40 cells on my other units. Reading with 20 cells is certainly doable, but it requires a lot more pressing of the panning buttons to advance through a single braille line. I’ve found though that as I practice I’m already getting better at it. My Mantis is currently on the fritz and I don’t know when or if I’ll ever see it again, so having this option so quickly available is vital to me being able to continue my work. I also like that it has a handy carrying case with magnetic snaps that keep it closed, which is kinda cool!
This reader is primarily designed to download and read NLS BARD books. However, it can connect via Bluetooth to your smartphone, and USB to the PC. It’s got an SD Card reader, and USB C port for the PC and a USB A port for a flash drive. I love that such a small unit contains so many ports.
It’s a pretty good device on the whole. The only issue I really notice, and this may be only in my unit, is that the battery gauge is unreliable. It says I have 50% charge, then 77%, then 19%, then 54%, so I can’t really tell how much juice it actually has. This is not a big deal though, as I’m usually close enough to a charging port at all times. I even have a portable battery I can plug in.
I am happy such a program exists. If you would like to take advantage of it, again just call your regional library and ask if they have an NLS Ereader. There was a slow roll-out, but they were at least hoping that all states would have units by the end of 2023. And happy reading!

“The Sign for Home” Examines Life and Challenges for a DeafBlind Individual

Posted on by John

Recent high-profile cases have shone a spotlight on issues regarding disability and independence. To what degree should one make decisions about one’s life, even if not fully able to perceive the world in what is deemed a “normal” way. Should family be able to basically dictate how a person is to live, simply because they believe they are protecting the individual from harm, thus possibly denying access to choices that other adults expect to have?
In his debut novel The Sign for Home, Blair Fell addresses this issue in a novel way. First, we have Arlo, a DeafBlind individual who resides with his devout Jehovah’s Witness uncle and receives information via a Tactile American Sign Language (TSL) interpreter who professes to believe the same. Arlo, wishing to explore possibilities in writing, enrolls in a class at a Poughkeepsie (NY) community college where he meets Cyril, another interpreter who accidentally or on purpose opens Arlo to a whole new world.
This writing class, taught by an unusual professor from St. Kitts, leads Arlo to explore parts of his past that he had been forced to shut away because his uncle deemed them sinful. These included an encounter with a deaf girl while he attended the School for the Deaf that led to his being sent to live with said uncle in the first place.
As the story unfolds, we learn that things with this girl are not as they seem. Arlo had been told one story about “the event” that ultimately ended their blossoming love affair, but… well as it turns out everyone has their secrets and lies. As the truth is revealed and Cyril and his associated cast of characters make Arlo more aware of possibilities regarding independence, he begins to push back against his uncle and Molly, the initial interpreter. This eventually leads to his seeking total freedom from his uncle’s guardianship.
Arlo and Cyril are primarily featured, with Arlo’s perspective being second person present and Cyril’s first person past. Both of these methods allow the reader to connect deeply with what is going on, offering a different set of feelings based on each. The former seems designed to ensure that one feels the experience of DeafBlindness and coping with a world neither heard nor seen insomuch as one can truly experience this, while the latter aims to allow access to the complicated emotions involved in helping Arlo deal with change.
At points during this novel, I as a DeafBlind person worried that the portrayal of Arlo made life for those living with these disabilities seem too simplistic and/or sad. Arlo knew little about how to operate in society when it came to moving around by himself and being willing to explore the wider world. The first part of this of course is that for some individuals who are DeafBlind, just as for those with other challenges, this is a true outcome. If one is not exposed to people and services such as Orientation and Mobility and Vocational Rehabilitation that are designed to help a person with a disability learn what is needed to thrive, one might indeed have a hard time. Even so, I appreciated that Fell included people who were functionally independent and who knew enough to teach Arlo, Cyril, and all in their circle some basic strategies to make his life easier. It is realistic, after all, to show that one might struggle with life as a DeafBlind person, but I believe it is equally if not more important to show that life can still be lived well with this or whatever condition one finds oneself.

Wordle’s The Word: On Internet Trends and Accessibility

Posted on by John

In a recent NPR story on what they called Garbage Trends, they noted that these sorts of trends arise on the Internet all the time and are often gone within a week or so. They are, I suppose by their nature, very visual and lack features that would make the accessible to blind and low vision people, as well as to folks with other disabilities that might require modification for full interaction.
But I think one of the cool things that is happening is that so many within our own community are learning how to create software or code that can render something usable far more quickly than an app’s developers, who are often hesitant to “look into the matter,” are willing to do. Such is the case with this new Internet word game called Wordle.
I remember the first time I saw someone’s Wordle post on Twitter and all I hear was something like “White square? White Square? Green Square” etc. I wondered hat on earth was that, becoming curious because I do enjoy playing word games, despite rarely being any good at them. I slowly saw more and more of these posts dotting my timeline, even among big-time folks, and yes I guess they’ve already hit that point of saturation that generates a lot of annoyance from those who no longer care to see such silliness. I can understand that, but I also wanted the ability to participate in the fun a little bit, especially driven by, as noted in that NPR story, the constant drudgery of the pandemic and related bad news.
So when I saw a Blind Bargains article detailing how one might set up the computer or phone with accessible code that someone created that would allow one to play Wordle, I bit. As one can see from clicking the above link and then the accessible Wordle page from within, getting things going with anything other than Google Chrome, which allows for simply adding an extension, is complicated. So I opted for the easy route and had mine up and running in a matter of moments.
The Wordle site generates one new word a day, and you have six attempts at guessing its five letters. It then tells you if you have correct letters, letters that are in the word but in the wrong place, or absent letters. I think I took five out of six guesses to get the first word and four out of six to get the second.
I just look at it as good, clean fun that allows me to feel like I’m “in it” with everyone else for the short time that this trend will likely last. And the implications of such nimble accessibility solutions being possible are not to be overstated either, namely in the potential for quicker adaptation to needed software for one’s job. So I’m delighted to see that we are able to come up with such powerful community-based solutions, and wish I were versed enough in their background, coding, scripting, and the like, to do some of that myself. Even so, I will just appreciate the efforts of others and hope that it inspires the initial creators to start taking wide-ranging access needs into consideration at a product’s creation, rather than it having to be built in later.