Tag Archives: Friends

FRIENDS CAFE: A Summation of the Rest

Posted on by John

Well, as it turns out, not a whole lot happens after Sunday. But, that is alright, as I very much needed the unwinding.

Ok, I am certain that I bring drippiness with me on any vacation I take. Just as happened to me last year when I went to Tampa, I really don’t get any sunshine down in Louisiana.

Monday: I wake at about 9, bringing in the day the same way as I had before. Just laying back, listening to 105.9, a soul station in Lafayette that someone has recommended I check out. As I do this, I read yet more of the Armstrong book.

After coffee and biscuits, we basically collapse into the rockers and sofas where we remain parked for nearly all day, listening to a TV country station. Well she doesn’t remain parked, actually. Despite still feeling yucky, she leaves to get the car ready for the return trip to New Orleans and grab us some yummy food. She brings us back a huge plate of chicken strips with fat fries and an unusual dip.

Other than this, I simply revel in the idea of just being, worrying about nothing except inhaling and enjoying the next breath, and of course cool conversation that comes and goes as we please.

On this day, as we had some on the day prior, we talk about the differences between the US and Australia. We conclude that while blind people may generally have more opportunities here, both of these fine countries still have work to do before their citizens with such disabilities really have a shot at the job and life choices they want. He is an advocate in the land down under, and I in many respects have come to see him as a sort of mentor, at least someone to whom I could look up to. I want to be a louder voice in this grand community, but have to get better at getting my voice heard. I think maybe I’ll get there fairly soon, but that remains to be seen.

I also make a silly comment about life down under.

“Everyone in Australia is upside down!”

“Upside down?” he asks.

“Yeah, relative to us. Isn’t that odd?”

This amuses us both. I hadn’t really understood what was meant by the phrase “the earth is round until I was 17 or so, due to someone’s patient explanation of how it is in fact like the globe I’ve felt many times.

On Monday night, we do watch the movie God Is Dead. It is an interesting story about a college professor who attempts to get his philosophy class to declare in writing and by signing their name to it before class starts that God doesn’t actually exist. One student refuses to do this, and is thus thrust into a semester where he must present evidence to the contrary. The movie is fast moving, and yet still thought-provoking.

Early Tuesday: We have initially planned to go to New Orleans’ French Quarter, so I wake by 6:30, not knowing at what time things will get started. But he has had trouble sleeping the night before and she is still dealing with this sickness. We soon learn that it is the flu, of the type that can’t be stopped with this season’s vaccine. I’m amazed I’ve managed to avoid it thus far.

Anyway, because of all these things, we don’t actually leave until nearly 12 PM. They decide that, due to the likely crush of traffic, cold weather, and general lack of time, we will go ahead and head for the airport instead. This is ok, it just means I have to plan another trip down to stop by and thoroughly tour New Orleans, probably when it’s warmer out.

On the way to the airport, we make what turns out to be a crazy trip to a place called Brick Oven Pizza. The GPS first leads us around the block, then up onto an unnecessary road that takes several minutes to traverse. I am surprised she doesn’t just give up.

Finally at the restaurant, I get an Italian personal pizza with sausages, peparoni, mozzarella, and some veggies. I manage to eat half of it, allowing the server to wrap the rest in see-through plastic in the hopes that maybe security won’t throw it away.

Then off to make the somewhat sad trip back to my humble abode. Though I resist it at first, I finally allow these people to put me into a wheelchair and zip me to security that way. That always makes me feel silly.

I check out some generally boring bowl games until it is time to board the flight at 6:20 for a 7:00 departure. The couple beside me, I think the woman is American and the man Mexican, are headed to Miami to visit family. Ah, how I long to go down there and stay for a week or so.

On my next flight, from Atlanta to Raleigh, I meet a woman and her mom who are returning from a wedding in Fort Meyers, Florida. I would go there as well. This kind woman offers to assist me both onto and off of the aircraft, probably getting appreciative nods and smiles from tired agents and flight attendants.

Finally back at Raleigh Durham International Airport, I have the individual who comes to collect e from this woman take me outside where I slide into a waiting airport taxi. When the driver is unable to understand the address I try to give him, I just plug it into my phone and have my GPS issue the directions out loud. This isn’t a bad idea actually, as I can then be reasonably certain that we are taking the expected streets and I’m not getting the runaround. I mercifully get home at 1 AM, message all who care to let them know I’ve made it, and slide under the covers.

And that is the end of my wonderful trip to the state of Louisiana. As I said earlier in this entry, the question isn’t if but when I will return. Heck, maybe I’ll go and find my wife there. Ha, ha. That wrapped 2014, and I am ecstatic to see what kinds of excitement 2015 has in store. Hope your year has gotten off to a good start. More probably quicker than I know.

FRIENDS CAFE: Kind Servers and Craw-fishy

Posted on by John

I will use the overarching title “Friends Café” for my trip to Louisiana, both because it’s the translation of an actual place we visited, and because it applies to pretty much everything I experienced on this journey. Never have I seen truer examples of “Southern hospitality” than I have in this fine state. So, let’s begin the journey shall we?

Friday, December 26

3:20 AM, I make my halting way out to the curb, absorbing the absolute quiet and clear cold that are present on this post-Christmas night. As the duffel bag’s strap digs into my shoulder, I hope that my prearranged taxi does show up at 3:30, for I have no other viable options that I can think of. 3:22, 3:24, and finally it pulls up at 3:27; actually three minutes early. Well done!

I hop in and nearly doze, warming my digits in the heat stream as the driver, from a Middle Eastern country I think, chatters about perceived differences between Christianity and Islam.

“Do you know why you’re here?” he asks.

I think his take-home message is that death exists to keep us from doing things that are too far out there, and that it also focuses us on finding our purpose. We should also strive to live the best we can while in this body. I can agree with those conclusions. I think more than anything though, he’s just talking to keep himself awake long enough to reach Raleigh-Durham International Airport, an 18-minute ride along Durham Freeway and Highway 40 according to Google Maps.

We do reach the building, and I am disgorged at the Delta Terminal. A woman who says she is on her way to Detroit helps me to the check-in counter, but I do not get anymore time to speak to her. Really, I suppose that few people feel like speaking at 4 AM, as even the worker who is guiding me says the bare minimum.

At the ever-so-fun security checkpoint, I am pulled aside and wanded, even having the palms of my hands scanned. Fun times. Then down to my gate, where I sit for about 15 minutes before being silently ushered aboard.

The first flight to Atlanta departs promptly at 5:10. I am annoyed for most of it, because the Braille display absolutely refuses to cooperate. Airplane mode has shut down Bluetooth, and when I attempt to re-enable it I still can’t regenerate the connection. I have since come to the conclusion that it is better to turn on Bluetooth immediately after going into airplane mode, and not once I plan to actually use the display.

I have brought two books onboard with me: Louis Armstrong’s New Orleans, an exhaustive piece about that city’s musical, Jim Crow, and other history as it relates to that jazz great; and Buccaneer by Maycay Beeler, a true crime story about a drug dealer who has all sorts of adventures transporting product and eventually lands in prison. I find the latter to be a better airplane read, as the chapters are generally short and action-packed enough to hold my interest.

After having guzzled a cup of coffee to also give me juice for the day, we touch down in Atlanta where I am to wait another hour and a half for my final flight to New Orleans. No one talks to me at this point, so I finally fight the display and get it working, and chat with people online.

The next flight is relatively uneventful and on time, so I just sit and enjoy this one. On both of these trips, well really all four, I have been placed in right-side aisle seats. This means I have difficulty engaging seatmates in discussion, since I can’t hear particularly well in my right ear. In the small talk I do manage on the way to the Big Easy, I ascertain that the person beside me is from Massachusetts and is visiting family.

“It may be kind of cold out there,” she says: “but I’ll still enjoy it!”

As we disembark, the flight attendant insists that I must try beignets and of course that other Louisiana thing: crawfish. An agent then shows up, whisks me into the airport, and since I’ve managed not to check a bag, straight out to where my party awaits.

I have come to see two individuals with whom I serve on the board of the Norrie Disease Association, mostly for the vacation and fun chatter that would ensue. They are both due to make the long trek to Australia, another place I would very much like to visit, at about the time that I return to the shop for work. The woman who is hosting me at her place actually resides in Lafayette, which is about as far from New Orleans as Charlotte is from Durham. I suppose I should have known this, but still end up feeling a bit bad for not flying straight into Lafayette. That choice does save me $100 at least, though.

Before beginning that drive, we stop at IHOP for a quick bite. I opt for a sausage, egg, and cheese sandwich and fries. They really give me two, and I can barely eat even one of them! This is only the beginning of my food consumption in that great state. I also have fun talking to the server in there who asks “what are you doing with that phone!” I think she was surprised at how I could even operate an iPhone. She is fun, funny, and cool, and keeps watching me for most of the time I am there.

On the road again, the guy and I in back start conversing about topics as wide-ranging as independence for blind folks, the pending big changes in the Norrie Disease Association, and what we want out of life in general. Eventually we start to drift off, and she turns on the radio probably to stave off the silence and keep going. After nearly 3 hours, we arrive at her place.

It is a comfortable little house with a 1-car garage. I am given a quick tour: shown where the two bathrooms, stairs, and the guestroom where I will sleep are located. I am then ushered to the little rocker where I immediately get comfortable, wrapping in an LSU blanket and enjoying the warmth of a fire. I quickly adopt this chair as “mine” during my stay there.

Not much happens until dinner, where I get to try crawfish for the first time. It is in a pie that they get from a place down the street called Pouparts French Bakery, kind of like a chicken pot pie type thing. There seems to be some other filling inside of it too: consisting primarily of the “trinity”: onions, bell pepper, and celery, and I enjoy it. I don’t notice much taste in the fish itself, but it might be hard to distinguish within that context. Accompanying that, we have a delicious salad. She accidentally gives me the one with Caesar (sp?) and he the ranch dressing, but I certainly don’t mind. It is delicious and full of flavor. There is also a potato covered in flecks of bacon and cheese. MMM.

And that just about wraps up Friday. As the weather turns gloomier, we opt to just stay inside and call it a night early. I am pretty tired, so take a bottle of water upstairs, crawl under the covers to catch some football on the phone, and soon enough give in to dreamland.

Christmas Vacation 2: The Party

Posted on by John

Because I am completely unimaginative, I will use the same subject line I did at this time last year. As I had then, this year I also venture to Lumberton NC to attend the now-Annual Christmas party this past Saturday.

First, the departure. I am excited to learn that Megabus has now made available a route straight from Durham to Fayetteville. This means that, unlike last year when I had to get a neighbor to drive me to Raleigh where I connected with Greyhound, I am able to launch straight from home.

I almost don’t even manage to get out of here in the first place, though. Uber, I still love you as a service, but I have to wonder about the drivers you’ve hired of late. I know that the Megabus is scheduled to leave at 11:25, and I would have to stand in the near-freezing rain to wait, so I admittedly opt to push it about as close as I can and leave at 11. The Uber driver I get though is unable to understand English or, I gather, follow the GPS. I try in vain a couple of times to explain the somewhat complex instructions for locating my apartment and finally hang up. Pondering what to do and prepared to call Durham’s Best Taxi, another taxi happens to pull up in front of me and ask if I need a ride. I’ve seen this guy before as he regularly cruises the neighborhood, and so I don’t hesitate to jump in and hope I still have time to get to that Megabus stop. And because I was unable to properly cancel my Uber, they still billed me $4, I guess their base fare.

Oh man is it cold at this stop! The wind is cutting, and the rain isn’t absolutely pouring but it’s certainly hard enough to make even checking my iPhone impractical. A couple of other families stand nearby, kids milling around and probably trying to keep themselves warm as well. The vehicle mercifully arrives, and a woman lets me stand with her so that I will know when we can board.

I guess the vehicles can be designed differently, as this one has virtually no seat pitch. I sit with my knees almost under my chin, well ok maybe not quite that drastic but close, and try to figure out a way to balance my Braille display on my lap so I can read.

“Excuse me, sir” I hear a voice ask: “where are you getting off?”

I tell her, and discover that she is an older woman from Connecticut who is coming to visit her mom for a month. She has some kind of physical issue who’s origins she is not even certain of, and thus is unable to walk easily.

“I usually use an electric wheelchair,” she tells me: “but they’ve taken it and put it somewhere else. Having to use my walker now, which kind of hurts me.”

We talk about potential careers, and she says she once worked in customer service, but wants now to use her cooking abilities to start a food truck. MMM!

She has offered to help me sort things in Fayetteville in the event that I arrive and my pick-up ride isn’t there, but as it turns out, my ride is indeed waiting. She, as well as the woman on the bus, expresses some concern about the area of town in which the bus disembarks, noting that it’s “real ghetto”. I am just relieved to not have to wait in the cold again.

We speed toward Lumberton as I make conversation with the driver and a front-seat passenger who is also a friend. Both of us blind folks opt to remain in the car during the quick grocery stop, sitting for only about 7 minutes while some additional supplies are acquired.

The party is much the same as it had been the year before and the one before that. I meet my cousin and his wife there, as well as another couple from smalltown NC not far away from Charlotte, who had also been there the previous two years. But, a friend from my university days has made an appearance for the first time in a while. And the most exciting find: my other long-lost “cousin” also shows up with his very kind girlfriend, who impresses us all by her willingness to just jump right in and make herself at home among this disparate, sometimes crazy group.

I am given two tins of cookies, as well as a gift that I still have wrapped because I want something to tear into on Christmas. Just a little of that childhood sentimentality, for old time’s sakes.

The evening’s highlight is the gift exchange. I brought an umbrella, easy to tell what it is even though wrapped, but hey a useful device! Especially considering that we’ve turned into Seattle lately. I don’t know who takes it, but it is plucked near last. I initially get a $25 Starbucks gift card (OO, nice!) but am not surprised in the least when someone opts to “steal” it. On my next draw, I got some sort of ringholder. Funny.

We also consume delicious nachos with cheese and meat, pasta sallad, and the requisite sausage ball that I have every time I go to this particular residence. We laugh as the NFL’s Washington Redskins amazingly knock off the Philadelphia Eagles, ending the Eagles’ hopes of making the playoffs.

After more chattering and ingestion of punch mixed with OJ, lemonade, Southern Comfort, and perhaps something else, I slunk off to bed.

And that’s pretty much the crux of the happenings at this year’s party. Most everyone had already departed long before I do, but I stay with my friend and watch our Carolina Panthers keep their playoff chances, which should by rights have been long gone, alive with a win over the Cleveland Browns 17-13. We have to defeat the Atlanta Falcons this Sunday starting at 4:25 in order to win the woeful NFC South, and extend our season with the worst record in NFL history of any team that has managed to do so.

I guess I’ll check in on that one while down in Louisiana, as I will be from this Friday till next Tuesday. Those will of course be my next series of posts. I’m guessing more will happen than I can even contain in two entries. We shall see, though. Wishing you all a Merry Christmas, and happy holidays.

EDIT: Oh, and I also don’t have to await a ride when I arrive on the Megabus in Durham, as the individual I’ve designated as my favorite cabbie happens to be there. I guess she positions herself near arriving transit vehicles like that and Amtrak to see if she can get a fare. Makes me happy, again.

#TransitThursday : On Uplifting Passengers and Drivers

Posted on by John

This post inspired by the most recent on GoTriangle’s blog entitled A Shout out to Operator George Walker, in which we were asked to recount our good experiences aboard Triangle Transit buses.

It never takes long for a routine to develop. Both in coming to and leaving work, I have encountered individuals who do surprisingly small things that make a big difference in the day’s direction. I suppose they are aware of the effect they have, but it never hurts to acknowledge in a formal way.

At 6 AM, I arrive at the Durham Station transportation center, where I await the usually timely 700 bus. This will take me to the Regional Transportation Center, (RTC), which is right across the lot from my employer. Usually I have my iPhone in hand, headset on, and some interesting programming to try and keep myself awake.

I think maybe a month and a half ago, I heard something unique as we approached the dropoff point. The driver, I guess an older woman but don’t know for sure, began talking to us on the PA. Ever since, she usually offers some word of encouragement, and makes a point of saying hi and bye to each passenger as we board and disembark.

She also has a pretty good singing voice. I admit I got a bit nervous when she began singing “If you’re happy and you know it, clap your hands” while navigating the winding roads near RTC. Fortunately though, she left the “clap”ping to us. We were all highly amused though, stomping and cheering by the time we arrived. The smile I had on my face after that, and after so many of her fun interventions, caused me to easily sail through at least the first half of the day before my head began to bob on a stick. I know she probably feels pretty tired herself, and so think it’s great that she takes the time to inject that little bit of life into her regular passengers.

The other person from whom I regularly draw energy hops on to ride in the afternoons. I’ve searched this blog high and low, and am surprised to discover that I hadn’t yet written about her, at least not in a way that I can think to find. I guess I’ve just done so in other circles.

Our initial contact happened, because she was concerned that I might find it difficult to get home safely through a forecast storm, maybe in mid April. I ensured her that I would be fine, and unwittingly, a friendship was born.

We only get two minutes, if traffic causes us to slow up enough, so the getting-to-know-you has occurred in fits and starts. She is an older, wiser, person with whom I talk a lot about my employment goals. Doing so leaves me feeling more positive, and also helps me think things through.

I enjoy watching the camaraderie she has with her colleagues, as they all band together to help each other out when needed. She has also helped me run errands on occasion, and would have allowed me to join their group for a fun night out in Durham if I’d not been too slow on the uptake with regards to checking messages. I would say that if there’s anything I most enjoy about public transit, it would be this kind of community-building.

So thank you drivers and passengers for helping to add some spice to what would in many cases be drab workdays. As always, I hope that I give at least half as good as I get.

Summer Wrap: Stream of Consciousness

Posted on by John

Even writing those words makes me want to cry buckets of tears. Already, we have reached the last weekend of official summer. I’m taking it all in though, enjoying a stiff breeze outside as I type and planning to remain out here nearly all day.

Hey, at least I had fun. This summer was characterized by more travel than I’ve been able to do in a long time: highlighted by trips to Las Vegas, Atlanta, and the usual repeated visits to Charlotte. I didn’t really finish my Atlanta story, but think I can still remember it well enough to capture the rest. I may do that tomorrow. I just went through a particularly bad period where I hadn’t really felt motivated, but one thing I can say for the Fall is it does fill me with the idea that things may turn the corner. That has rarely actually happened, but one has to think that eventually it will.

One thing I especially enjoyed during the month of August, though it seems to have quieted down lately, is making a new friend in the area. She is the kind of person who reminds me of others in my family, such as my Aunt who sadly is no longer living, as she loves to walk.

We took a stroll to the Sarah P. Duke Gardens, a couple miles away from here maybe, and listened to the animals and kids waddle by while taking in the aromas of almost every kind of plant imaginable.

Then we went to a wine tasting at our local grocery store, where I drank enough to feel it a bit but not anymore. It doesn’t take much for this lightweight, of course.

With her, I learned where our pool is, as she’s a huge fan of swimming, more about the bus system, and that there are even a couple more places around here that I need to visit for their menus. Plus, she helped me to acquire and consume my requisite summer watermelon, MMM! I guess it wasn’t as good as it could have been, but one should expect that from grocery store fruit in my opinion.

That kind of serendipitous encounter can bring so much richness to a person’s life, for sure. I appreciated the patience she had not only in assisting me, but doing so while managing her two young children as well.

And now, I must go back into a post-summer savings mode, to try and recover from the wild financial flins I took this year. Well hey, I worked all summer too, so had to have a bit of fun! The last big thing I’ve done is upgrade to the iPhone 6, because my 4S is giving me all kinds of trouble lately and it’s just time to move on from that thing anyway. The 6 won’t get here for probably another couple of weeks though, as it’s being shipped and they’re probably backed up all the way to the Pacific in orders. I think I can make it till then, though.

So, what was the most interesting thing you did this summer? Meet any new people?

And finally, I want to thank the owner of this blog for publishing a few of my older posts. It got me some recognition, which is cool. More soon, and go Panthers! Off to a 2-0 start, and we have a nationally televised game against the Pittsburgh Steelers tomorrow night. Football is one of the only things I do like about colder times.

A Birthday, The Middle

Posted on by John

Happy Saturday! And a big birthday milestone reached for me, my 35th. (I almost typed 354th, but that would be something entirely different for sure).

The somewhat morbid side of me became curious: what might my life expectancy be. According to this chart in Wikipedia, which I’ll admit I don’t entirely understand, the US is 34th in national life expectancy rates, at about 78 years? My grandparents lived at least until their 80s, so presumably if I start to eat healthier than I do now I shouldn’t even be halfway to the end. In any event, 35 just sounds like a nice round number, and a good place from which to evaluate and take stock of one’s outcome thus far.

Things are certainly getting better for me. It was at this point last year really that I suddenly became much more familiar with my surrounding neighborhood. Probably since then, I’ve only been to Chapel Hill a handful of times. I’ve already written many times though about my treks to the strip of restaurants that contain Dunkin Donuts, most notably my Regulars post. I love this area, feel quite attached to it, and will remain here if I find desirable employment nearby. I think that may happen within my next year. Optimistic? Maybe, but so much momentum seems to be building.

For some time, I’d wanted to explore a local restaurant here in Durham. While I rail against the “chain”edness of everything, I still too often end up spending my money in such establishments. I must admit that this is because chains tend to be cheaper, and I have a pretty good idea of what I’m going to get.

Today though, I opted to finally venture over to Geer Street Garden. Located at 636 Foster Street, which I find odd as it is named after the street on whose corner it sits, its main claim to fame is “real, downhome food”.

Before departing, I attempt to look up the menu on the iPhone as I usually like to. It seems though that Google Maps is losing some of its accessibility, as loading it now causes my phone to act eradically at best. I get to where I can tap on the menu, but give up on trying to read it after it refreshes and throws me back to refreshes and throws me back to back to the beginning of the line ugh! I finally just opt to call and check on how crowded things are, as I usually like to do, then I summon my Uber ride.

(Wanna use my Uber code? Please? johnm1014.)

I arrive at the restaurant, and am asked if I wish to go to the outdoor patio. Of course! The night is nearly windless, and drier than I’d expected given the forecast of all rain. I’d also gotten lots of sun earlier therein, too. This of course improves my mood.

I sit at a small table, the loner table I guess, and listen to the people as they filter in. Kids running around the porch and screaming. Music playing. Me sitting there, attempting to play with my iPhone in the data dead zone.

The server comes over, and I quickly decide to have the lasagna plate special, with garlic bread and a side salad. For my initial drink, I have lemonade.

The salad is covered in balsamic dressing. This non-foodie thinks that’s a vinegrette? Whatever it is, it tastes like vinegar. There was mostly lettuce, carrots, and tomatoes.

The lasagna reminds me of what real lasagna tastes like. Piping hot, delicious cheese and sauce, and nice, real chunks of ground beef. I even enjoy the crunchy stuff on the side of the bowl.

And the bread? Oh, man. It has little peppers therein, and real garlic that somehow tops any garlic bread I’ve ever had. I savor each bite, mixing it with the last of that yummy dish.

Ah, I don’t like that their online menu is image-based, so I can’t review the kind of drink I had. I ask the server for something local, especially a beer.

“Do you like cider”

Um, I think so” I reply.

I think he tells me I am drinking something called Cristin’s Hard Cider? It tastes delicious, but more like a wine than anything. I am not really sure if it has much of an effect on me either.

Finally, I decide for dessert to have Keylime pie. I get that to go though, and as of the writing of this entry, I haven’t consumed it. I hope it will be good.

Another server, a woman, helps me back out front and waits with me while I summon my return Uber ride. We chat amiably for the few minutes it takes for the vehicle to arrive, and I am off home. After getting a bit lost in this sometimes confusing complex, I come back inside and call it a day.

This was a fun birthday, about as much as I could ask for as an adult. I like that I heard from so many old friends via Facebook and Twitter, and managed to make a couple of new ones. Very interested to see what year 36 will bring.

The Real Deal 4: Last Full Day

Posted on by John

Tuesday is already here? Man, how the week has flown.

I ring in the day again listening to a bit of that morning show. This time though, I turn it off at about 7, so I can shower and come back to listen to some of that day’s ACB General Session. I most enjoy listening to the scholarship recipients, as I hope maybe their career choices will inspire me to become unstuck somehow. Still thinking…

On Twitter, Indianapolis woman mentions she is at the Java Stop, s I indicate that I might come down and try to meet her. Given how incredibly crowded it is, I know that us actually finding each other are not all that high. However, I happen to be seated just behind her after purchasing a banana nut muffin and coffee, and she hears me arrive, thus scooting over to the small, rickety table. The woman from Canada then tries to find us as well, but this does not prove to be as successful.

We sit here for a few, chattering about all sorts of things. Then, we go to the exhibit hall again, mainly to pick up an iBill currency reader, but also to check out a couple of other products/vendors.

In place of fully accessible paper currency, which I’m pretty sure they’re still working on and think should debut no later than 2020, the US Bureau of Engraving and Printing is distributing the iBill free of charge to all blind folks who need one. They essentially had a trial run during the convention, allowing attendies to snap these things up in exhibit hall. The representative told us that they will be available for all blind folks by January, with those who are already eligible to use the National Library Service for the Blind (NLS) being able to preorder in September. I’m not sure what advantage preordering confers, but maybe they get them first?

So I can cheat a bit, now that I am at home and have unboxed the reader. The instructions are readable, and it doesn’t take too long to figure out how to work the thing. I put the money in wrong initially, though. I want to really learn the vibrations, as then I won’t have to have the thing call out “50!” when I scan that, not that I carry around that kind of cash anyway. Still, vibrating would be more effective in very loud situations as well.

After grabbing the box containing that device, they also ask for our contact info, we make our way toward others. I go over to the Freedom Scientific booth, where I play a bit with a Windows tablet running Jaws 16. They have a nice Bluetooth keyboard with that thing as well. I don’t notice anything particularly exciting about that, but I think it may be a bit cheaper than buying an iPad or some such. If I do go for a tablet, I will probably still get an iPad and Bluetooth keyboard anyway, maybe once this laptop is on the fritz.

I also play with a Blaze EZ, at least I guess that’s how it’s spelled. This is kind of a combination of blindness-specific notetaker and smartphone, and its most impressive feature is OCR technology. They scan a document and let me hear as the voice reads it. Apparently, these things have been selling like hotcakes.

Finally, we make our way back toward the lobby and food court, as she wishes to have lunch before attending a 2:00 event. There, we run into our Canadian friend, and the four of us head to Big Burger where I opt for just a soda as I will have dinner at 4:30 with yet another friend.

Since the woman from Canada and I are planning to meet the same person, she and I hang out for the next couple of hours. Neither of us really have anything else on our schedule. I am already starting to feel drowsy and somewhat sad.

Dinner is again at Wicked Vicky’s, a place with pretty good food for prices that aren’t too bad for hotel stuff anyway. Canada woman has me craving popcorn shrimp, but I decide at the last minute that I want one of their chili dogs. I figure I can get shrimp whenever I want, and that this hotdog is probably unusual.

And I figure correctly. First, it’s huge! The bun is super-sized, and still the frank extends beyond its edge. The chili isn’t ground beef, at least not like hamburger meat that one might expect, but rather real, delicious chunks of meat. There are also beans and veggies. Served with fries, it has me full to bursting and happy to part with the $13 it cost.

I contemplate attending the Talent Showcase, as I have at the previous two conventions to which I have gone, but decide against it. Admission at the door is $25, not too bad I guess but higher than the $10 it usually goes for. Plus, I can just stream it from my room. It is a pretty good show though, and I think I most would have enjoyed the band that accompanied people and had its own tracks as well. One woman does a particularly stong spoken word piece, and a couple of others perform great original songs.

The last thing I really do in Vegas is to ask my friend from the previous day’s breakfast if she could come and take a picture of me in the casino. Hopefully it can be seen here, via Twitter. I’m sitting at a slot machine. Do I gamble? Well, no. I keep meaning to, but just feel it’s basically throwing money away. I know I know, I could keep it really small and stop after a couple of turns. I guess I’ll do it the next time I go out there.

My picture-taker and I then wrap up the evening again at Banana Leaf while drinking delicious mango smoothies and talking more. That smoothy reminds me of the sweet mango milk shake I had in Washington DC, MMM. She tells me that a smoothy and milk shake differ in the same way that yogurt differs from ice cream: that the former is generally healthier.

She needs to head back up and do some work though, so I take about a third of that to my room, listen to the ever-saddening news, and go to bed.

The Real Deal 3: Information and Enrichment

Posted on by John

Monday morning. No alarms! Still, I awake at 6:30.

I hop from station to station initially, but decide to listen mostly to the Mark and Mercedes Morning show on Mix 94.1. It’s at least local! They keep advertising some sort of “eat and greet” where you get to chat with the Goo Goo Dolls at a pool party put on by the station. It sounds like fun stuff. They also note, with a combination of happiness and bewilderment over the surrounding hype, that Las Vegas will soon have an Ikea furniture store. Their most interesting discussion revolves around the question of whether you can be in love with two people at the same time.

I have arranged to meet yet another Twitter follower whom I hadn’t met previously for breakfast at 9:15. She had indicated that we might leave the hotel in search of quieter environs, but when we start to look around inside we discover that Wicked Vicky’s (I keep wanting to call that place either “Wicky Vicky’s,” or “Wicked Vicked”) is actually relatively empty.

This will give us more time to sit,” she reasons. It ends up being her, one of the exhibitors whom she assists, whom I also have gotten to know well online, and the woman from Indy, whom we suck in as she floats by. It is again all in the randomness of convention.

For breakfast, I order a Wicked Vicky’s Stack, which consists of delicious French toast, sausage patties, and cheese eggs. I also have two cups of nice, hot coffee.

To make talking easier, the person I’d come to meet asks the server if someone will turn the music, which is kind of loud, down. They just plain turn it off. I often get nervous about requesting such things, but must admit that I could hear a lot better without it. I enjoy the chatter as my belly fills.

At this point, I have little to do until approximately 1:45. So I head back up to my room, where I read, fade into and out of sleep, and just enjoy vacating. Until..

“Housekeeping.” Oops? I’m about to be kicked out of here! Well ok, I doubt it would’ve been that serious. Still, I opt to get out of their way and let them work, realizing only after I’m on the elevator that I have forgotten my bag. Better hope the hearing aid batteries hold up.

I make my way into the lobby and towards the convention center so I can see about attending the workshop on deafblindness and employment. I enter the room, where I am told they cannot scan credit cards so I must head back out to registration to purchase a ticket. The line for that isn’t terribly long, and in about 6 minutes I am seated again and ready for the presentation.

Some technical issues pop up, and while they try to fix them the main presentor, who is totally deafblind, goes around to meet those in attendance. She takes my hand, and another voice says “Hello, nice to meet you. Where are you from?”

“Me?” I reply just to be sure it is she who is speaking to me. I believe she makes a sound to try and confirm that for me, even as the interpreter speaks for her.

Once on stage, she asks us why we think she wants to meet us in that way, making contact while doing so. It is an important, and really the only, way she has to physically connect to a person, and insodoing she gleans other information from the person as well. She also has an environmental interpreter who lets her know how the audience is reacting: are people falling to sleep, cell phones ringing, other conversations going on, etc. As a blind person, I don’t even know some of that kind of information as I present. It is fascinating.

I think that kind of interpreting takes quite a bit of work though, as the voices switch off three times during the talk. Another individual, whom I think is blind and hears ok, speaks as well. There may have also been a third, sighted/hearing person up there.

They highlight the work being done at the Seattle Lighthouse for the Blind in employing those who are deafblind. That location hires interpreters to allow employees to talk with supervisors and co-workers, as well as working with those groups of people to teach at least some rudimentary signs to facilitate basic communication. They also use normal pagers to alert deafblind people of breaks, dismissal time, and emergencies through a series of different vibrations.

The crux of their talk is that we must understand how privilege, power and independence work together to make possible or shut someone out of a chance to use his/her skills in a meaningful way. When possible, try to stay away from words like “help” and instead say “support(s)” as it can indicate a more active role by the deafblind individual. In my opinion, some of this is a question of what a person means when using certain wording, but I do agree that it should all be considered.

After this event concludes, hunger has again gotten the best of me. I order a too expensive ham and cheese sandwich and Mountain Dew from the Java Stop, though if I had waited another hour or so I would have been fed. It is 4:45 now, and the Vanda Pharmeceuticals reception starts at 5:45. But whatever. Without my bag, and thus my headphones, I am forced to press the iPhone against my head as I check email and messages over the roaring crowd while I chomp.

Next to the Vanda reception, where I have at least five different kinds of cheese, crackers, grapes, shrimp, and a spring roll. They give us about 15 minutes to work on our plates before beginning.

Vanda is a relatively small drug company that has worked for several years to develop a drug, now called hetlioz and previously Tacemelteon, to help totally blind individuals combat non-24-hour Sleep/Wake Disorder, otherwise known as Non-24. After a fairly intensive study, this drug has just gained FDA approval for that narrow subset of the population. A doctor speaking on behalf of the company gives a comprehensive presentation covering what is known about the drug, reasons for using it, and possible side effects.

The drug must be taken continuously and at the same time once started. If one were paying out of pocket it would cost a considerable amount, however they continue with their campaign to get more insurance carriers to cover it. To start, people will receive refills from a program called Hetlioz Solutions, but they hope to bring large pharmacies like Walgreens into the mix eventually.

With regards to side effects, none are particularly dangerous. The most common, I suppose not surprisingly with a sleep medication, is drowsiness. There could also be liver problems, so you have to be aware of that if your liver is already compromised in some way. Less effective in those at or over 65. Always seek medical advice before even starting to take something like this anyway, as possible drug interactions and/or the presence of other disorders may need to be taken into account.

After a moving personal testimony about how this drug has helped one woman come back to herself, they take questions. The most notable comment, and it can apply to some other companies as well, is that the ads promoting this treatment tend to portray blindness in a very negative light. We need to find a way to get the message across without making it sound as if we are all sad sacks who don’t know how to cope.

Overall though, I found it to be an informative talk. Will I take it? I’m not sure, as I’m a bit wary of depending on anything continuously like that. And while regular sleep would be good, my life is such that it would be impractical for me to go to bed at the same time absolutely every night. I don’t know, we’ll see.

At this point, it is 7:53. With the assistance of one of the presentors, I make a mad dash for the Suite Tower elevators as I am to participate in a Braille study at 8 PM. Once onto the correct floor, we already hear those folks calling my name, and so I slide in.

The guy who running the study seems to be totally blind, and has a sighted assistant who makes sure that things are in the right place. They fit my right index finger, the reading finger, with a small camera that will record my motion. Something is also strapped to my wrist, I guess more for stability than anything else. Before I start each test, the cameras must be calibrated to the beginning and end of the Braille line.

First, I am given a small hard copy Braille book to read. I take it in as quickly as I can, then am asked a series of questions about what I’ve just learned. I find it hard to read with any kind of speed and remember exactly what I’ve read. Man! Kinda makes me worry about whether I have some kind of issues with this period, and if it didn’t make my education not go as smoothly as it could have, especially in grad school.

The second, shorter passage is done via a refreshable Braille display, an electronic device that can be connected to computers or mobile devices and made to render the text in Braille. I find this a lot easier, and really want one of those HandyTech displays! This particular display is 40 cells, which causes me to sail right along. I still have some issues remembering all of what I have read, though.

“I feel like a lab rad!” I quip.

The final part makes me feel most like a lab rat, as I had to try to decide if something was a word by jumping over two extraneous Braille cells being placed in the middle. This is a real challenge, because my brain needs the continuity. I note my decision by pressing pedals with my feet, right for yes it is a word and no for it isn’t.

“Am I going to receive some sort of electric shock for getting it wrong?” I ask while chuckling.

“Nah, I’d be in jail if I did that,” he replies.

I can’t help grunting and moaning when I mash a pedal and realize a second later that I have made the wrong decision. It is all rather amusing. I think mostly he wants to get a sense of how and why we make mistakes when reading that might help in coming up with methods of increasing our effectiveness with the Braille medium. Meanwhile, as I walk back to the elevators I shake my head and question my intelligence.

I wrap this day in the Banana Leaf Café, an Asian fusion (whatever that means) restaurant at the hotel. I grab a delicious chocolate cake, and get my iPhone screen all sticky as I pound out messages while eating. Then it’s up to my room for more reading, and off to bed.

The Real Deal 2: Sunday Fun Day!

Posted on by John

Sunday arrives, slow and sweet. I allow myself to lay in bed, luxuriating in the fact that I have no immediate reason to rise and can enjoy the time away.

As always, my favorite thing to do is listen to road morning shows. I initially reach for what I think is the clock radio, but quickly give up on that and start playing with the Tune In app on my iPhone. I hate that they no longer make it as easy to change stations, other than once they’re in the Recent Stations feed. They have some sort of cumbersome social media-type interface now, which just makes it harder for me to find stuff.

Of course, most Sunday mornings are given to religious content. So, I listen to a bit of some pastor in Vegas before rising at 10:30? 7:30? something:30! What is this time thing we’ve made up anyway. They say humanity is really the only species that so closely watches it.

After spattering water all over the floor from my shower, as there seems to be no way to stop it from flying out the side, I slip into a casual pair of slacks and button-down shirt. I hope to look just presentable enough for new sets of eyes that I might encounter.

Then into the hall for the fun elevator game! Gah it drives me a little bit crazy when places have four of them from which to choose. Whack the button, stop breathing, stand really still, and there it is! Only BANG! no? wrong one. Oh that one wait, I nearly lost a finger! Relax, begin cycle again.

I play this annoying sprint around the vestibule a couple of times, until I hear some, I guess high, heels come clicking into the room.

“Sir, may I help you?” she asks. I’ll finally get down!

I don’t notice till she tells me, but she is from Scotland. One of my favorite accents, for sure. She says she’s about to check out of the hotel and head back, I think.

She kindly walks me to the jam-packed Java stop, where I latch onto an endless line. I try not to pound the person’s back who stands in front of me too many times, but also to balance that with moving up when I need to. I sometimes feel I’m the worst at waiting in line.

Audio recorded from therein: Initial Craziness

Then I meet a kind volunteer from Georgia, cool accent too, who agrees to help me find somewhere to sit while I await my city tour. Only everything is pretty much full, so I go back into the Java Stop and sit till she again comes to collect me at 12:45 to board the bus for the 1:00 departure.

I love heat! But, that Vegas heat is something different somehow. The second we step into it, I feel all of my water leaving my body.

“I couldn’t stay out in this for more than ten minutes,” I say.

More audio: City Tour Snippet

And that woman continued being just as entertaining, having us all applauding, laughing, or groaning in turn. One thing became clear from her words: Vegas was built by rich folk who had that kind of money to throw around. I know she said one person built a casino at the request of his wife, so that his love for gambling wouldn’t end up costing him everything. He’d just be recycling his own money. Not surprisingly of course, Vegas is seeking to diversify beyond strictly a gambling Mecca of sorts, as well.

I had always wanted to get to convention early enough to do the city tour, just because I love hearing people talk about their area. Yes, it would’ve been cooler to walk around some of those places, but I’m not sure how much of that I could have handled anyway.

Back into the hotel by 3, I finally decide to make my way to the exhibit hall. Here, I meet a couple of long-time online friends and folks who were selling products for the first time.

From the AT Guys, I purchase a Soundpods portable Bluetooth speaker. I’m pretty satisfied with it, and think for its size it doesn’t sound half bad. It does make it easier for me to take in content from my iPhone while in bed.

From Elegant Insights, I acquire a Braille-embossed, copper key chain that reads “ACB 2014. It’s a nice little souvenir. I also volunteer to be this vendor’s first experiment using a credit card, a task made interesting by the fact that she uses a somewhat challenging iPhone app that requires turning VoiceOver off and back on a few times to get it to record the card info. Still, it is great that such technology is even moderately accessible to blind folks, and I hope it continues to become more so.

Finally, it is the part for which I have most been waiting: the tweet-up! I am surprised that the crowd there isn’t larger, but it works out for me as I can easily hear everyone in attendance. Here, I meet one of my longest-running online friends from our neighbors to the north, Canada. I also meet a long-running friend who stays in Vegas for the second time ever. We all introduce ourselves by name and Twitter handle, then spend the rest of the time chattering away about any and everything.

I plan to go to the opening ACB General Session, but as soon as I make my way out of the tweet-up location around 6:30, my Canadian friend, one from Indianapolis, another person from Canada and I think yet one more ask me if I wish to join them for dinner.

“Hmmm, that sounds fun,” I reply.

We then spend the next half hour working our way to the Wicked Vicky’s Tavern, being given spotty directions and losing each other a time or two in the process.

“Hey, this is how we roll at convention,” I say. “We’ll get there eventually.”

Once seated, I opt to have some delicious-sounding meatloaf and mac and cheese. The mac and cheese wasn’t the “real” baked stuff I most prefer, but then I guess I shouldn’t have really expected it to be. It was pretty good anyway, though I had to stop eating it once that runny cheese began to make me feel sick.

This is really the last thing I do, after which I retire to my room to see how my speaker works. I know that, not being the most technologically adept person, it would probably take me a minute to figure out the Bluetooth component. In the meantime, and this is probably unfortunate as I may never get around to learning said component, I discover that the cable they provide for charging also has an end that will allow it to be plugged into a headphone jack. So, I’m still kind of just using that.

I play with the volume, trying not to turn it up too loudly as those walls seem to retain no sound. As I feel myself flagging by 11, I finally slide under the covers and call it a night.

Getting To Know You

Posted on by John

I have always found it interesting the ways in which we become aware of those around us. I think especially among those who are blind, we are often not fully aware of the degree to which others watch, perhaps learn from, and become familiar with us from afar.

I especially noticed this this past week. I had to miss a day of work, because my left ear, the good one, decided to ring really loudly and make it difficult for me to function. This usually happens when we experience drastic swings in temperature, but for some odd reason it occurred on the day before said temperature changes took effect. It ended up being a plus, as it created an opportunity for me to go grocery shopping during the day. Less crowds, easier to get in and out, etc.

When I returned to work the next day, I was somewhat amused by the number of people who came up to say they’d noticed my absence and missed me. They knew my name, but I couldn’t really tell you who they were. In addition to my blindness, I am also atypically quiet in there. I’ll speak when spoken to, but generally I remain lost somewhere in my thoughts. I suppose this also explains how so many end up just getting to know me in a hands-off sort of way.

The phenomenon of knowing starts long before we even begin to speak. I’ve had the pleasure of participating in many of my twelve nieces and nephews’ upbringing, and was always amazed by how attached to me they became. They each seemed to have their own ways of preferred connection: one I could lure into a calm state by using a strap, another liked to listen to me whistle a tuneless melody as I walked him up and down the hall, and a third just needed to know I was in the same room as he was. This last one left me feeling like perhaps I could actually hypnotize him, as I could say “you’re getting sleeeepppy,” in that funny, dragged out voice and he would indeed quiet.

They would also, I believe, demonstrate that they knew I was unable to see them. Whether they thought this by choice or fully understood that my eyes didn’t work, who knows.

My niece, for example, would make a humming sound as her little legs propelled her along the floor and to me, until she was able to tap my leg.

And once, the strap-loving nephew decided I needed assistance into the laundry room to put my clothes into the hamper, and then back into my mom’s room where he knew I liked to watch sports with my dad. He may not have even been a year old then, and hadn’t really developed speech yet except for the ability to make a sound that approached “here”. Then he grabbed one of my fingers and led me around the house. I guess he’d seen enough of me nearly tripping over his and others’ toys. It was cute.

Even nonhuman animals are capable of getting to know from afar, of course. I think primarily of the little toy fox terrier that my sighted cousin had when he moved into our Charlotte apartment in 2008. I have never become as close to any living creature as I did her. Sad? Perhaps.

She especially enjoyed interacting with me when I sat in the big, comfortable swivel chair I had at my heavy oak computer desk. She’d tap her little head on the side, stand back a few inches, and watch me turn to face her so she could then leap into my lap. Then she’d lay there, picking her head up if I began to talk to her or demanding attention occasionally with her paws.

She most showed her understanding of my likely limitations once when I’d taken her out for relief. I guess I’d gotten lost in my thoughts, and she decided we’d go for a longer walk. She probably had tried to get my attention somehow, but I didn’t notice. Next thing I knew, we were on the other side of the street and behind that set of apartments.

“Look what you’ve done!” I yelled as I tugged on the leash. “Now how on earth am I gonna get back home?”

She then slipped through a narrow fence, causing her collar to pull hard and come off of her neck. Now if she’d done this with my sighted cousin in tow, she’d think “freedom!” and “game time!” and take off. However, she probably knew that I couldn’t catch her, so she sat down a couple of feet in front of me and waited for me to reattach the collar. Then, she got ready to cross the lot and, probably, correctly head for home. I didn’t fully trust that we could do this safely though, so I pulled back on the chain. I believed she then deferred to plan B, which was to find an apartment with a human inside that I could ask for help. I did this, and an old man who walked with a rather pronounced limp assisted us back to the right place.

I’d guess that getting to know one another, and discern likely motives, has significant survival advantages. And, of course it helps us get whatever it is that we want from another, as well as to give to others what they might enjoy. I’m not sure blind folk will ever be really good at fully understanding tendencies, since there’s so much we miss by lacking observational abilities at least from a visual standpoint. But, I certainly do pick up on and have an uncanny memory for voice, smell, and other odd quirks. Just something I’ve been pondering all week. How much do you pick up from others as you go about your day? Are you always watching as a new individual comes into a room? What about other kinds of sensory information.